What are you doing to treat it? Neuronton is usually the first drug they try. If that feels then Lyrica. I take Lyrica and alpha lipoloc acid. Many years ago the doctor had me dangle my feet off the bed for ten minutes, then lie on the floor with feet elevated on bed for ten niutes, the wrap them in wool for ten minutes.

Lycra did not work for me, It only put on weight . Right now I am taking Gabapentin twice a day and my neuropathy is still getting worseI feel like my feet elevated because I am in bed in pain..I am trying see what is next...

My have been going numb for years, to various degrees and I often do stretches to improve things. I lay on my back, knees up and rock knees gently from side to side holding the stretch shortly on each side. Also pulling each knee separately towards your chest may help. When sitting down I often put a small thin paperback under one cheek and that helps. This you have to experiment with as to what side and how thick of book will help, if it does at all. I've gotten use to the constant numbness so it really doesn't bother me anymore. Even some mornings I can't feel either of my legs at all and I simply roll my whole body from side to side and that usually wakes them. I find a "balance" helps greatly. Too much exercise may cause harm and none at all isn't good either. Hope this helps, Blaine

I do the same one as Blaine with knees up and rock slowly side to side. I was told nerve damage can't get any worse but since coming here i've found that it seems to be the exact opposite.

Do you have a Pain Management doctor/specialist? They can't cure you but can sometimes make your pain a bit more bearable. I'm sorry your suffering so much and hope coming here helps, it made a difference to me knowing i wasn't the only one living with this.

I only get this at night and when it am driving. At night I deal with it by going down on the couch and just laying there until I fall asleep from exhaustion. When driving I always take a pair of clogs to slip on. It certainly much better when I wear these or no shoes at all.
Ny issue with the feet is always more pronounced in the cold weather months.

I can't understand what is causing it and Niobe of the doctors,I've seen care about getting to the cause. They say just deal with it. I am but think that at some point I will be crippled by it. It progresses slowly.
None of the meds ever work. they just make me have bad dreams bordering on nightmares

From my own personal 'torment journey' I have dealt with neuropathy twice and by the Grace of God, beat it both times. Circulation and blood sugar levels are major players in the symptoms developing. If you have been diagnosed with pre-diabetes, I'd got to the health food store and get a bottle of Cinnamon/chromium and a bottle of Gymnema. Alpha Lipoic Acid and B12 are very critical to help you turn it around. I've seen a neurologist and 3 doctors in my two episodes and not a single one mentioned trying supplements, but they will pop Lyrica on you and a host of side effects to boot. I strongly recommend purchasing a Ultima Neuro device and place it on each leg a minimum of 30 mins on each leg. I suffered a lot for 3 months before I discovered this remarkable device and within a week of using it my symptoms were 90% improved. My website is neuropathynick.com and there are a lot of supplements and the Ultima Neuro device offered in my online store. I spent a ton of money in those 3 mos. and the money this device cost was nothing to the money I wasted trying to find and answer. A website that is terrific is www.drhelpbooks.com/neuropathy. I hope God touches your body and heals you from the tip of your toes to the top of your head!

Aloha! I have been having a lot of problems with burning feet (and sometimes hands) in the warmer months and freezing cold feet and hands in the cooler months. I live in Hawaii so we don't really get extreme temps. But this summer sometimes my feet will be on FIRE!!! Like someone lit a torch under them. I have to sleep with ice packs on my feet. I saw my PCP about it I don't have diabetes or any other disease. But I do have fibromyalgia. She said it's peripheral neuropathy... I've been on gabapentin for yrs (also on topamax). But my neurologist said it's NOT neuropathy. I don't know what to make of it. I just know it's uncomfortable. I aslo have plantar fasciitis and usually have to wear supportive shoes with insoles. BUT because my feet are on fire I haven't been able to wear shoes, only sandals. So now the plantar fasciitis is starting to act up. It's a lose lose situation.

It has taken a long time to try and get used to the numbness and other sensations I have in my legs. The burning is my pet hate along with the 'fits' that my sciatic nerve has occasionally.
I have just joined this group and hope to learn from others any tips and information anyone might have in this area. And happy to share my own experiences which hopefully may help others.
Happy Tuesday/Wednesday to you all.
Nessa

I too have just joined this group as I am from Australia and am 51 years old and was diagnosed by nuerologist through sweat and electrode test withidiopathic SFN 3 years ago, my GP was not aware of this condition, (do we call it a disease ), so I rely on my nuerologist for information, but he never will discuss what the future holds in regards to progression of SFN just states we can only just deal with the symtoms. I have always suffered from anxiety /panic attacks and bouts of depression from my late twenties, but feel anxiety brings on the burning. 3 years ago I started on 75mgs of lyrica and I used to empty some of the contents out of this capsule because my god it used to make me feel dopey and blurry eyed, well three years on I am of 300mgs of lyrica both morning and night, Lexapro 30mgs and zannaxfor my panic attacks. I used to work full time as an administrative officer cut this down to 4 days a week and then often have to rest on the couch for an hour when I get home. I have days where I feel nausea and days when I have to stop myself from falling asleep in the pm in front of my computer screen. I often get a racing heart dizzy upon standing due to very low blood pressure. Please help me with some feedback because I feel like a alien with a weird condition that's to hard to explain to people just give up. I am having bladder issues, initiating a stream, frequently wanting to go at time mostly I late day or night does anyone else. I don't know if seeing a rheumatologist would help with issues does anyone else. I have elevated my bed at the bottom to help with circulation as I was constantly getting awoken with pins and needles in my arms. My burning has always presented across the back off hips does anyone else. I so value your opinions in my quest for I not the only person with these crazy body.
Thank you

Hi Carol
I just joined and I am too from Australia (Sydney).
I mainly see my rheumatologist for my issues. Mind you he doesn't really give me any solutions just mainly treats me with medication. I see other helpful people such as acupuncturist, massage, physio, and I do physiocise. All these things helpe to manage my pain and life as best I can. I am not like I used to be but at least I can have a little bit of a social life.
Then I come to here - DS. Without the support of the people here I would not have found hope and a way through the tunnel. I still have a lot of bad days but try not to use all my 'moons' at once (not sure if anyone has suggested to you to read the spoon therory).
The issues around your bladder are concerning and I would see your neuro about this.
I could not take Lyrica. It didn't work for me. Took awhile before I got the right combo of drugs. I tried a few. All trial and error and painful but glad I tried.
I Hope you have had some rest over the holidays and are being gentle to yourself.
Please keep us posted on how you are.
Gentle hugs

Thank you Ness for your feedback I will look in to adding a rheumatologist and acupuncturist to my support network. I have not heard of the spoon theory.
With thanks

I went to the doctor yesterday and I was telling him about my very cold feet. I hope there is an answer because there are days that I am outside and I can feel them going numb. Still waiting on answers. My feet have never really been warm for years.
Years ago I used to take Lyrica and my doctor fond out that I could not take the side effects and took me off it. It made me sick and put weight on me.
I am exercising just about every day for about an hour or two at a time . It helps to keep the pain levels down and my weight off.

Hello all,
Greetings! I’m new here and would like to tell you a bit about my situation and perhaps get some feedback. I’m a 60sih male with non-diabetic idiopathic peripheral neuropathy for about eight years now. No parental history but older brother is quite numb from the knees down and he is diabetic. I have partially numb toes/feet and need a cane to get around. Never had any pain thankfully. My neurologist ordered just about as many tests you can imagine: three MRIs from my brain down to my tailbone, all blood tests, heavy metals, etc. Nothing. Therefore he pronounced it idiopathic and put me on Baclofen to try to relieve the stiffness in my legs, but it doesn’t help much. Anyway, had acupuncture for it and that actually moved the numbness a bit from my toes to my soles, but it eventually returned. A few sessions of rolfing didn’t help either. Started taking Alpha Lipoic Acid, Benfotiamine, and B 12 for the last few weeks hoping they’ll wake my feet up. Still waiting.
So, I’m looking for answers and suggestions. I’m thinking about seeing a regular neuropathy doc but just wonder if he/she would have more options than the regular neurologist. Anyone have experiences along these lines ?Thanks......

i've gonethru amytrypoline, nortrypoline, gabepentin, now lyrica which works great for me- but whenifirstgot periphial neuropathy 12 years ago in hands and feet i was working and went to booze whichkilledthepain tillmorning, got sobad i ended up ondisability, 3years ago ifinally got off the booze and joined a gym-lyrica 150mg twice a day and a tramadol when needed(couple after working out) the numbness and sensitivity to pain is always prevalent just the way it goes- but the burning is gone unless i forget my evening lyrica couple nights in a row- with weighttraining i'veregained my hand strentgh and do cardio on the elypticaltype machines- no tredmills-for me is planning your activity it willnevergoaway- i'm not diabetic and the neurologhist after emg test concluded genetics but who knows- its a lifestyle changer but not an ender-i felt inthe first couple years att age 35 life was sucking- depresion is the killer of this disease-about to turn 48 and now foot ulcers are becoming a problem so you got to deal with that cause the numbness hides problems and feet don't heal like they should but i'm learning how to deal with that- all i got for now

Hi, I take neuroton and alpha Lipoic Acid, excuse my spelling, and I do well with it. I don't want to miss a dose, because will go hard with me for sure. I have it in my hands , head , legs and feet. Sometimes my feet burn, but not my hands. Thanks God for my meds!