Neuropathy Community Group
WELCOME to the Neuropathy group... For all those who have all types of Nerve Damage and PAIN! A GREAT PAIN resource area! Over 100 photos and 25 research topics on specific pain issues.
meganK08
My hubby may be leaving me he says i do not try hard enough to work or help out around the house. My aunt who just went through a divorce says she is suprised he hasnt left me sooner. and all this came about from me saying i may be late getting off the plane on monday babe i asked for help. you know like a wheelchair because i cannot do stairs right now. he needs to go to the dr with me or to counseling but when i asked he said why do you need me there. i just want him to understand. its like he cannot see that i am hurting. we just bought a house last month is the sad thing and you know when he proposed he knew nothing what my family had money wise and now its like that is all he married me for. we got the house because of me even though i am not working. I cant work for more than 4 hours at a time and i havent been really able to work all year. tears me up inside he told me before he knew anything that he would take care of me, he loved me. he wants me to get the nerves cut but even i know that can not solve the problem and can even make it worse if they grow back wrong or it can move to another area and wreak havoc. I have pelvic neuropathy and all the nerves in my pelvic floor are damaged T10-S1 all because of a staph and strep infection from getting an IUD placed or birth control. My hubby was my first im only 23. everyone always says your too young for this type of pain but my hubby seems to be so blind. I want my life back as much as he does. I used to work two jobs one full time and the other was just bagging groceries. I also went to school full time, now i cannot even sit there. I make lists of things that I am going to get done during my day and i make myself get out of bed even on my worst days and do it. I used to walk marathons mostly the bataan death march a 26.2 mile march through the new mexican desert in rememberance for my grandpa who was one of the first army rangers. I just used to do so much, i was a much happier person, I had wonderful friends and family. Now my family for the most part lives here in Kansas and im in New Mexico. My friends dont want to be around me because i always hurt. I think it is funny how they will say why didnt your mom ever tell us she was so sick and all this (she died suddenly when I was 15). Im seriously thinking if i didnt have my dr and counseling appt this week that I would stay up here with family, my hubby just seems like he is done with it. How said i understand it is your body but i cant deal with much more than this. The me not working and hurting all the time or needing naps and forgetting things because of my meds which he says is an excuse. I feel like I have no one to turn to my family wants to help with my neuropathy but they also yelled at me for not working. they say i lay around to much when i say i need a nap. its not even a long nap i just lay down for 20 minutes. i mean sorry the other day was 4 hours i took benadryl on top of my lyrica because i broke out in hives. but my friends even one ive been a friend with for 13 years wont give me the time of day now because i have had to cancel on her so many times because of this. ive tried to provide my hubby with info and my dr even says he needs to come in so he can see my mri but he wont and that to me says he has already given up. Does anyone know what happens when they cut the nerve? My dr says my nerves should heal in a few years and i keep praying they do but cutting or freezing them seems pretty harsh when we just started treating my nerves in june. i mean i got on birth control for my hubby and it took us 3 years to find one that didnt make me puke my brains out all the time or caused that darn infection. I dont know how to make my hubby understand but maybe i should just let him go, move up here with family and hope for the best. i love him with everything and when he dislocated his knee two years ago i was right there working two jobs going to school payed all the bills for a year and took him to all his appts and surgeries. he always tells me he has work or i have school. That is what he said when i said i got help to get off the airplane was well i have homework and school so you cannot take that long. he doesnt have class until 530 and i get home at 2. i dont know guys i dont need this stress. my classes are online so if i didnt go home this week it would be ok but im so afraid of losing my hubby i wish this neuropathy never happened. im happy we figured out what was causing my pain but try tellingmy hubby there are no magic fixes and he says he cannot deal with it and doesnt want too.
deleted_user
I am so sorry to hear what is happening to you meganK08, that is not nice at all. I just wanted to send you lots of hugs.
deleted_user
OH MY,Im so sorry you have to go thro this.I have a great support system.I wish I could share with you,just wanted you to know I was thinking of ya.Good luck hon.
deleted_user
MeganKo8, I'm so sorry you are having to deal with so much. Neuropathy is a horrible disease. Members of this group are fighting the same battle. But you need support. I'm so sorry your husband and family don't understand. Please know we are here for you. If you want to talk or vent just let me know. I'm a good listener and I'll support you all I can. I'll keep you in my thoughts and prayers. Sending big gentle hugs your way.
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