Neuropathy Community Group
WELCOME to the Neuropathy group... For all those who have all types of Nerve Damage and PAIN! A GREAT PAIN resource area! Over 100 photos and 25 research topics on specific pain issues.
meganK08
Hi guys I suffer from pelvic neuropathy after I had a really bad infection. Im only 23 and trying to work in school and as a educational assistant but having a hard time. I take lyrica which so far helps but my family says it is like im a different person when im on it. And boy with pain i know when i need it too. I also use the lidoderm patches and oxycodone for breakthrough pain. And just last week had a nerve block which im still waiting for it to help. I had my cycle last week before the block and was having to use the oxycodone at least 3-4 times a day just to take the edge off. I was taking baths, heating pads, stretching, i was just miserable. After the block though my pain was gone for a few hours and i felt great for the first time in months. :) And i really want to stop taking the oxycodone i did a few days ago my cycle was gone my pain for me was at about a 4 which was great and just wonderful. then last night i dont know if i did too much or what but the pain is just so sharp in my back and just shoots down. Its like someone just cutting through me. HUbby said he thought someone was trying to kill me i woke up screaming. Does neuropathy heal at all or do we suffer from this forever? Im tired of having to take the pain meds how often do you guys find yourselves using them? I know my dr is getting ticked at me i keep telling him things are not working. He moved me from 100mg of neurontin roo my highest 400mg in a month, then the lyrica and now the nerve block. He says the next thing is cutting the nerve which actually kinda scares me. I just i know it is different for everyone and for me my crazy cycles coming whenever they feel like it dont help but how much breakthrough pain is too much? Somedays im taking at least one oxy a day for the sharp horrid thing that shoots down through my hips and pelvis. I have joined the gym though and am going to try the pool class or bad days just float it helps. I do try yoga and relaxing and just keeping occupied but im just still new to this i dont know how to deal with having to take pain meds everyday i cannot work on them i have a hard time remembering with the lyrica so my school work suffers. Just a hard thing to learn to deal with right now. If you guys could help in anyway i would be so grateful i just wanted to know maybe what you did to help your pain besides pain meds and how often you took them? And how many nerve blocks before you felt any relief does it really take so long to kick in cause this is horrible. Thanks guys many hugs and i hope everyone has a pain free day
Meagan
Meagan
deleted_user
Meagan, I really have no answers or any idea how to help you. Just want to let you know I'm here for support. I also have horrible pain 24/7. I finally get to go see a new Neurologist in October. I'm just hoping I will be able to get some help then. Please get a second opinion before you even consider having the nerve cut. I've read that it can cause more problems and even more pain. Please please read up on it. Do your research on line, whatever it takes. I'll be thinking of you, if you just need to talk, let me know. I wish you the best and hope you get some relief soon. Hugs
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