Neuropathy Community Group
WELCOME to the Neuropathy group... For all those who have all types of Nerve Damage and PAIN! A GREAT PAIN resource area! Over 100 photos and 25 research topics on specific pain issues.
In March my hands and feet started turning purple not my nails my actual skin. Then they will feel like they are asleep all numb and tingly. I have to use a walker now which stinks because i am only 24. But while I was in Phoenix in March for a dr appt I ended up being admitted to the hospital because I collapsed in my hotels lobby embarassing. The lady at the desk vanessa I was in the hospital over a week but they still do not know what is wrong why I cannot feel anything but maybe some pressure in my legs all the way to my waist. They did a test where they shocked and stuck needles in my leg and I couldnt feel the needles. So I have been going to physical therapy since then. I can walk a little now but i cannot stand on one foot, my heels, or toes. Vanessa was so sweet I had called her to tell her that I had been admitted. She checked me out of my room and brought me my suitcase and pillow to the hospital. She would even come and visit me after her shift at night.
I know that my nerve damage is from T10-S1 but this is weird and frustrating. I have been going through so many hospitalizations lately I just want to be me again. I want to feel better already. It is frustrating. It is just so much stress that you know the feeling where you need a vacation from your own body? I really need one now.
In March i had what seemed like the flu and was so ill that my husband took me to the Emergency room 4 times. Which is a big step for him because he is normally embarassed when i end up there for either my pain or because he says I go for bs. he was unable to go with me to Phoenix in March for a follow up appt. I tried to stay home because I was so sick but the dr told me it was better if he seen me during a "flare up" than not so he could make sure I was ok and I didnt have an infection. I did collapse and was admitted out there for two weeks. I made my husband drive all the way from El Paso to Phoenix to pick me up. If I had flown home I would of had to take the walker with me and get a wheelchair and would of had to be carried onto the plane. Then on April 27th through May 7th i was admitted to the hospital again because I fell outside walgreens hard and I went to the ER where my blood pressure was through the roof and i was so sick to my stomach that they were admitting me when I had a seizure that I cannot remember. They had to replace my IV after 3 days because of the medication and it took 12 tries from all kinds of nurses and a NICU and ICU came in to try and get an IV started because I was so dehydrated that my veins were just so tiny they kept collapsing. I almost had to have a picc line. I had another seizure last night hubby called an ambulance but i didnt go to the hospital. It is just scary and frustrating because I do not remember anything and I cannot take my pain medicine anymore. They dont know why I had the seizures too. just frustrating.
If you couldnt take your medicine anymore how would you deal with your nerve pain? Any advice on what I can do? Right now warm baths help a little bit but I cannot live in my tub no matter how painful it gets.
I know that my nerve damage is from T10-S1 but this is weird and frustrating. I have been going through so many hospitalizations lately I just want to be me again. I want to feel better already. It is frustrating. It is just so much stress that you know the feeling where you need a vacation from your own body? I really need one now.
In March i had what seemed like the flu and was so ill that my husband took me to the Emergency room 4 times. Which is a big step for him because he is normally embarassed when i end up there for either my pain or because he says I go for bs. he was unable to go with me to Phoenix in March for a follow up appt. I tried to stay home because I was so sick but the dr told me it was better if he seen me during a "flare up" than not so he could make sure I was ok and I didnt have an infection. I did collapse and was admitted out there for two weeks. I made my husband drive all the way from El Paso to Phoenix to pick me up. If I had flown home I would of had to take the walker with me and get a wheelchair and would of had to be carried onto the plane. Then on April 27th through May 7th i was admitted to the hospital again because I fell outside walgreens hard and I went to the ER where my blood pressure was through the roof and i was so sick to my stomach that they were admitting me when I had a seizure that I cannot remember. They had to replace my IV after 3 days because of the medication and it took 12 tries from all kinds of nurses and a NICU and ICU came in to try and get an IV started because I was so dehydrated that my veins were just so tiny they kept collapsing. I almost had to have a picc line. I had another seizure last night hubby called an ambulance but i didnt go to the hospital. It is just scary and frustrating because I do not remember anything and I cannot take my pain medicine anymore. They dont know why I had the seizures too. just frustrating.
If you couldnt take your medicine anymore how would you deal with your nerve pain? Any advice on what I can do? Right now warm baths help a little bit but I cannot live in my tub no matter how painful it gets.
Why can't you take your pain medication anymore? I didn't quite follow all that. I've been around a while, but haven't been following the posts recently. I know, however what it's like to have frequent falls "all over town". It gets to be quite embarrassing when the EMT's know you by name and when they arrive they say, "Oh, it's just Lois". I have several different types of neuropathy. Autonomic neuropathy being the one that most often causes the falls because of sudden blood pressure changes, and fainting episodes. I also have motor neuropathy with right foot drop. There was a time that I had to walk with a walker when I was not much older than you. I now use a cane for short distances and an electric w/c for longer ones. I live with my parents. Dad has alzheimers and Mom has severe debilitating degenerative disk disease with spinal stenosis and is in constant pain. We all take care of each other the best we can.
I don't have any answers for you about your hands. It could be Reynauld's disease or peripheral neuropathy. Sounds like you have a lot of things going on and that's a question you need to ask your doctor.
Best wishes,
Lois Lynn