Backstory and Symptoms:

I'm a 23 year old female and I have been told by Cardiologist #1 of 4 that I have Vasovagal Syncope (NCS). I first fainted when I was 10 or 11. It was hot at my aunt's funeral and I hit the deck. I then started passing out from the shower. Luckily I have enough warning I was always able to get out of the shower and pass out on the floor rather than inside the shower. For the last 13 years I've taken lukewarm/cold showers because of it. I can't take a hot or even warm bath, get in a sauna/hot tub- completely out of the question. Leaving a towel on my head after the shower causes me to be hot and sweat profusely which leads to being dizzy. Putting lotion or deodorant on before my skin has cooled and dried completely causes overheating immediately that is prolonged throughout the day. When I was younger I would get dizzy and nearly pass out in the mornings getting ready for school in my mother's bathroom under the lights. I can't drink hot (caffeine free) tea or eat soup except in the dead of winter when it's freezing to death. Coffee makes me dizzy even if I'm sitting in a chair. I can't lay out by the pool or I get dizzy laying-horizontally. I ride horses and a couple of summers ago I discovered that I can't even wear gloves to ride because they trap enough heat to make me dizzy, regardless of water and salt intake. Sometimes I actually have to ride without a helmet because my options are: 1. wear a helmet and pass out while on a horse and most likely get seriously injured. 2. don't ride at all that day. or 3. ride without a helmet. And as it's not my horse's fault that I have shotty blood vessels, I ride without a helmet and put my health at risk in that manner as opposed to a different one. I'm certified as a personal trainer and could easily make a career out of it, in theory. Instead I'm in completely unrelated sales because there's so many fitness activities I cannot do. Burpees, box jumps, jump squats, even jumping jacks are out. Anything with a quick "up and down" motion are not an option. I even have to be strategic about any type of lunges and step ups, and cardio is only viable when I've had 1500mg+ of sodium and a gallon and a half of water that day. Which means morning work outs aren't an option. In my sales job I do go door to door, except now it's May so I can't do that again until October. So my sales will either suffer for the next 5-6 months or I will have to find another way to generate sales. Heat is my body's kryptonite which is so devastating for me because the thought of winter and the cold gives me panic attacks because I love summer so much and despise the cold with everything I have. I live in a place that is 80 degrees and above with 70%+ humidity, 80% of the year. I get dizzy walking to my car in June.

Tests done:

EKG x4
ECG x4
Holter monitor x2
Pulmonary stress x1
EEG x1
5 hour glucose tolerance x1
Thyroid x4
blood work x 1 million

No tilt table, which I plan on demanding next. I have had 2 different drs test my blood pressure lying, then sitting, then standing. It does drop drastically but I've never been told numbers.

Treatments prescribed:

Potato chips
Water poisoning
Zero caffeine
Fludricortisone
Neurologist
"Come back if you have a problem again"

Prognosis:

Unsure, seeing as every doctor I've ever seen is completely dumbfounded but too proud to admit that so they pass me off to someone else.

Question:

My mother's sister had the exact same thing. Same symptoms, same triggers. She had a pacemaker at 40 and she hasn't had a single issue yet. On a pacemaker forum, none of them are convinced it would help. Anyone here have one that has had success? Or not success? I'll take that too. Just trying to get some feedback before my appointment next week with yet another cardiologist where I intend to make a scene and demand SOMETHING that will give me even a relatively normal life.