Hi everyone, I wonder if anyone has the same sort of symptoms I have. I often feel lightheaded for a while and it passes, other times I feel really faint but never pass out, just feel very unwell and detached from reality, can't think straight, my heart rate lowers to 55-56 bpm (occasionally 48) and this can last for up to an hour until I feel better but leaves me very tired. I find it very scary and it really upsets me sometimes, makes me want to cry. I have found a doctor that would listen to me after 8 years and he thinks I have NCS. My ECG was normal and I am waiting to have a 24 hour blood pressure monitor, they will then try table tilt test. I also have fluid in my left ear which may be contributing to the dizziness? awaiting ENT appointment. I can't hear very much from this ear but the hearing does not bother me. My systolic blood pressure is sometimes low 105. My cardiologist has reassured me that it will not kill me and I can continue to exercise but I often feel to weak to do exercise which I love doing and its very frustrating. I try to drink plenty of fluids and have extra salt in my diet which I think it helps. I have also been taken a small dose of thyroxin for a few weeks as my thyroid was a bit low and this has made me feel better, be less tired and improved my symptoms, they used to be a lot worse.

Thank you very much for listening, It is very difficult to find people that understand