i have a few thoughts on this. first, its a very very complicated issue with narcoleptic sufferers and support. i havent seen hardly any support for them in tne nation in general. and they are definetly a vulnerable group without much protection. there is alot of abuse in many forms experienced by narcoleps. if the fact that hes diagnosed so early is very very forunate and very rare. most narcoleps suffer for 10 or more years before accurate diagnosis, by which time the disabling damage is done. so is it bad that ur cousins mother isnt being as supportive as she coudl be? yes. but could it be worse? oh ya. wanting to help him is the best thing anyone can do. but if for example the state takes him away and gives him to a place that helps him even less, thats going from the pan into the fire. making it worse wont help. so this is why i would do... i would reach out to local support groups, and local medical groups/doctors. u dont have to mention anythign about neglect or abuse at first. u could just say that u have a 13 yr old family member with this rare disease and u want to learn as much as possible about the support options in the local area, the national support groups, what dangers to look for, what treatments, what side effects, what social factors can develop, etc etc. try to learn as much as possible. then as some point after u think its safe, u can mention that u think the mother is neglectful. this wont be a new idea to the groups/doctors i suspect. this might be a common situation. then ask what your options are. can the medical community assist or intervien? can the legal community assist or intervien? are there other family members or friends that would be willing to accept permanent support? are there support groups that are able to provide permanent support? theres a national support group called NORD (national organization for rare diseases) that helps me pay for my naroclepsy medicine. which is about 10$ per pill without assistiance. so thats about 7,000$s worth per year they save me. truth is, narcolepsy sucks and its very complicated. the DS community can also help a huge deal with options and ideas if they see the topic post :) good luck, lets hope ur younger cousin doesnt end up like by age 20 :P

DJ from what i have seen in your prev posts and journal about your cousin, you do not have a diagnosis of N&C, you asked us if it could be and described symptoms and the advice was that it sounds like some sort of seizure but not N/C. I think your aunt is extremely worried about her son and is trying to protect him as much as possible at the moment at least until she gets some answers from neuro tests he's had. You say he has no meds, but they don't know what's wrong with him, so what meds would he be on? With all respect you have only known him a few months, and do not know him as well as his mother, and i'm certain she will be looking after him the best she can. As for stopping you seeing him, I can only suspect she's mad as heck about you totalling her car, regardless of how it happened, and she is probably worried that when the boys get excited about being with you, it may trigger one of these attacks, that seems a reasonable assumption as his worst attack yet has been after a day out with you. My advice is to let her cool down about the car, and let her concentrate on looking after her son, she wants to wrap him in cotton wool at moment, and try to avoid anything that could cause further attacks, a natural motherly thing to do, when she finds out what's wrong, then maybe you can help her research, but tbh i think you need to give her space, and just let her know you'll be there if she needs you. Take care of yourself and don't worry about the boys

The mother is draggin her feet on getting this kid diagnoised. We have another appointment Friday. I hadn't thought about her still being upset about the wreck, but dallin you have a point and I am glad you read about me and know my background. That is good to know. You both have made good points.

Just a lettle suggestion re: the forgetting what he's eaten. I'm narcoleptic & tend to forget to eat/or what i've eaten, so I write it down. Tediou, but it helps me. Esp as the dexedrine kills my appetite.
I would urge your cousin (his mother) to seek advice from a neurologist as soon as possible. Early diagnosis would make getting through school/college possible.
Good Luck

Hey.......
hi Dj-I have to highly!
disagree with U'r so call
help,sounds to me that the only person who is acting like a "super hero" is U??why don't U move aside and allow mom to do her Job,I'm sure u'r help is greatly apreciated,but U might be doing harm than helping this cousing of Urs.My advice to u Dj is step back,I'm sure that after a few days or weeks of U not being around things will probably be much smoother.really think about this.