Narcolepsy Support Group

A sleep disorder (somnipathy) is a disorder in the sleep patterns of a person or animal. Some sleep disorders can interfere with mental and emotional function. If you are having trouble falling asleep or having some other kind of sleep disturbance, this group is for you.

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/ Narcolepsy Support Group

Is sweating part of Narcolepsy?

mijken
mijken
I am so happy I found this great place, and as I read along, I find more and more of my physical problems are linked to narcolepsy. I was told about 4 yrs ago by a sleep specialist- nerologist, that I have narcolepsy. I quickly told her she was "wrong" and left, It sounded so bad it could not be me. So I have been working with a Family Dr. I told my Family Dr. that the sleep Dr. she sent me to, was a nut case who said I had narcolepsy. Over the years I noticed my Dr. has put me on many of the meds for Narcolepsy lol. Anyway the nightmares are so horrible I can't believe my pea brain has the ability to make up the stuff I dream, and the sudden falls, the cataplexy are so bad I feel miserable. I get the shakes at times, serious anxiety, even in my sleep. I see things, and have automatic response, I sweat so bad I don't want to leave the house. is sweating normal in narcolepsy?
deleted_user
deleted_user
Hi Mijkin,

I first started exhibiting N when I was 18 months old when I had a series of C attacks. Unfortunately, I was not diagnosed until I was 24.

So, as a child and teen with N, I did not sweat a whole lot. But around the same time I was diagnosed with N I was also diagnosed with Hashimoto's Thyroiditis and after that had started, I started to sweat a lot. The Hashimoto's was new since my thyroid function was fine a year prior.

Interestingly, The thyroid is controlled by the Hypothalamus, the area of the brain that is affected by N. Many people who have N also have a thyroid disorder.

I would suggest getting your thyroid levels checked out.
deleted_user
deleted_user
Oh yes! I wake up in the night soaking wet. I often dream I am swimming because my brain knows I am drenched.
I`ve even thought that I`d peed myself because the water is running down my legs. I get this every night, even if I am cold. I don`t know the answer, the doc can`t help so I just put up with it. My husband says he knows when I`m ill because my sweat smells `different` even though I shower twice a day. I`m so sorry for you, I have terrible dreams and sleep paralysis, the `old hag syndrome` but you`re not alone although it may feel like it sometimes, all the best.
mijken
mijken
Thank You so much! 1. have to take thyroid medicine for hypothyroid, Dr. said Hashimoto's and 2. I dream of swimming and can't wake up to catch my breath.
I get this weird pins and needles feelings and a wondering itch as well, like I'm being poked with a needle here and there all over my body. After a shower it bugs me so bad I want to scream! so I will try to deal with the sweat, and take all my meds as directed. what do you think of the itch?
Thanks again!
deleted_user
deleted_user
Well, to be honest, I've had that weird twitchy thing since I was a kid. It feels like there are ants crawling on my body and then sometimes I'll get a small sharp pain like I'm being poked. The funny thing about that is if I scratch the area, I'll all of a sudden feel it in another part of my body.

I think it's called hyperaesthesia.
deleted_user
deleted_user
I`ve been told by my GP that the body thermostat doesn`t work properly in narcoleptics, hence the sweating. The itches could be a kind of heat reaction but I was surprised to find on the net that there is some research being done about a possible link between narcolepsy and allergies. I used to have terrible rhinitis, all year round, itchy eyes and skin and a runny nose. I used to take Piriton which sent me comatose though I didn`t know why at the time. My son has asthma and eczema which is the same gene as rhinitis. I can`t stand the heat and scratch myself silly. Also try corticosteroid cream, that works but not long-term `cos it thins the skin.
deleted_user
deleted_user
If your older and your face is breaking out still you might want to see if you have Rosecia. I am 45 and asked why I still break out.....turns out that is what it is. I use a fragrance free soap and put this gel on my face. Now its way better........as long as I avoid chocolate and coffee etc. I hate that part!
deleted_user
deleted_user
Re sweating. I saw my GP yesterday because I was so fed up with being drenched with sweat. He said that I have too many white blood cells which means my body is fighting an infection. Unfortunately my body is fighting the hypocretin cells and killing them off! I also have diabetes and Crohn`s disease which are also auto-immune disorders. You could get a blood test done and see if you have the same problem, best of luck.