I think everyones situations are different. I was just recently diagnosed and my meds dosage just went up because I'm still always tired. Even with taking something to help me stay awake I still need to have a nap.
Best of luck, and hopefully you can get some answers!

Hey Beth

Everyones N is totally different just like Tearose said. But we tend to need more sleep or rest than everyone else and even with that are often still walking zombies lol.

Are you going to have a sleep study done?

I used to think I was the clumsiest person ever falling over anything and nothing and taking ages to get back up. I didn't even tell my dr half the stuff that was going on with me because I thought everyone slept like i did and had weird hallucinations that they knew weren't real but couldn't move etc. Turns out they don't.

Definately read up on here and ask as many questions as you want. Be really honest with your Drs and let them know what is going on even if you think its really trivial like pins n needles in your hands (which happens to several of us and seems to be mild cataplexy). This is a very weird illness and the most you can do is learn about it and yourself and keep in contact with other people like us with Narcolepsy who can share the wild journey with you.

good luck

Yes, I'm going to have a sleep study done. I had one done a few years ago but didn't do the MSLT so I will do that this time.

I forgot to say........Years ago back when I was pregnant, I started to go weak in my legs when I would laugh and had to crouch down and I could feel that my face was doing somehting but I couldn't see it. It passed, go pregnant again, same thing so I assumed it was a side effect of being pregnant. It never went away but it wasn't the worst thing in the world, it was just my face was doing something strange when I would laugh. It carried on for 5 years and then one day it switched to when I laughed, I hit the ground and it looked like I was having a seizure. It turns out that the entire time that was happening it was actually cataplexy. You don't have cataplexy unless you have N, so I was diagnosed based on the severity of teh cataplexy.
I told my DR about how I laughed, and I hit the ground and my face felt funny and blah blah blah, they dismissed it until they thought I was epileptic.
I'm not a DR, but you could be experiencing cataplexy attacks. Have you noticed if theres certain triggers? YOu should keep a log of how often it happens. I find that I forget everything now, not sure why, but writing it down helps.

Yes, the doc said it could be cataplexy. I'm almost always tired when it happens, and I'm often having high anxiety or just finished watching tv or a movie where I got emotionally involved. I either fall down from standing, or start to stand up and land on my face. My arms are always still strong, though, so I can catch my fall. Sometimes I can pull myself to a sitting position on the floor, sometimes I can't for 15 minutes or more. Nothing happens with my face though, it's just my legs and sometimes arms. I decided to start writing it down, and it stopped happening, lol. It's been a few weeks since the last fall. I still feel weak at times, but can keep myself from falling.