Narcolepsy Support Group
A sleep disorder (somnipathy) is a disorder in the sleep patterns of a person or animal. Some sleep disorders can interfere with mental and emotional function. If you are having trouble falling asleep or having some other kind of sleep disturbance, this group is for you.
Yesterday; in a group event I once again became the topic. It seemed like everyone had a funny ha/ha story to tell of my sudden attacks of sleep, and the many conversations I've had with each of them that I do not remember. I do not know how to handle this. I do not find it funny. For years I have been taken advantage of ....in many ways, I've made promises I can't keep, fallen asleep in my bowl of soup, gave money away that I don't remember, give my belongings away in my sleep, loan my kids my cars, order everyone pizza and pay for it, and I just am now trying to figure out a way to cope and to stop. I feel so bad when everyone I know has a funny story about me to tell, and I am just hurt that they my family and friends know, and have known, about my illness, what they do to me outside normal consiousness, and find it funny. This is not funny to me. what do I say? how do I stop doing all this in my sleep? It's getting worse as I get older how do I cope. am I alone?
This sucks
Mijken
This sucks
Mijken
Wow, I don't really know how to say this in a nice way so I am just going to say it.
It doesn't matter what or how you have N or C it matters what the people around you DO when they know you are having these attacks. If any of my friends did that to me they would not be my friends for long.
I too do things I don't remember, it's called Automatic Response. I have made appointments to things I never turn up to as I don't remember making them and agreed to things over the phone that I have no recollection of... BUT once I explain about my N it is understood that nothing I said is able to be taken for fact.
If you have a problem with being ripped off, which I think you do, then you need to sit your kids down and tell them that taking advantage of you is wrong and that taking the car/money/whatever when they KNOW you have had an attack is pretty much taking advantage of someone and to a point stealing.
Why on earth would you be friends with people that do that to you?
You are not alone in this at all, I think we all have funny stories about it, but when reading yours all I feel is anger to the people taking advantage of you.
Are you on meds for N?, do you have a medic alert bracelet?
Your friends and family need to know that things said in an attack - which it sounds like they know the difference - is not to be taken as acceptance of anything. Also stand up for yourself, tell them that yep that happens but if they are going to take advantage then they need to either stop and realise it is not going to happen anymore or get rid of them.
Good luck
I am taking adderall for the day, effexor and ambien at night, I keep to a strict sleep routine but I think things are not doing too well. My dreams are so bad, I feel like some kind of static is taking over my body, I can't wake, I can't scream, I'm not a happy camper right now. I really appreciate your words of encouragement and think I am going to be direct with them about the situation and see if they listen, I am so often just embarassed over all this I want to just be invisable. Thanks for your support!