Narcolepsy Support Group
A sleep disorder (somnipathy) is a disorder in the sleep patterns of a person or animal. Some sleep disorders can interfere with mental and emotional function. If you are having trouble falling asleep or having some other kind of sleep disturbance, this group is for you.
I've had a heart condition for about 3yrs now and was recently diagnosed with N with small episodes of C.I am lucky that so far I haven't required medication for my heart. My doctor tried me on Nuvigil to help with EDS but after an hour of taking the first dose it became painfully apparent that I can't tolerate stimulants. The Nuvigil severly irriated my heart and caused exessive heart racing and pounding with extreme dizzy spells. My doctor isn't comfortable putting me on any other stimulants because my chance of having the same reaction is very high. Right now I'm getting ready to start Xyrm but I'm concerned about having to take something that strong. Is there any other method or medication that I can try to help with EDS before resorting to the Xyrm? Any advice about N would be greatly welcomed.
There is a different class of drugs that work on the histamine system that I believe have shown some promise (in small clinical trials) as an alternative to stimulants. I don't know if they are available or would be appropriate for you (I'm not an MD) but you might ask your doc to look into it. If you want more info, let me know and I will try to get some references for you to take to your doctor. I'm so sorry -- this must be very scary for you! I know I worry about Matt's cardiovascular health and he doesn't even have an underlying problem yet! (thought both his parents had strokes and/or heart attacks in their 40s/50s...