Ok, so how do I find out for sure what is from what. I know I have hypermobility, and it's obvious from pain radiation that the SI joint is a problem too. I see things like this and alarms go off because I'm afraid that I'll just be chasing treatments around the country, dumping money everywhere and with multiple problems and no communication...round and round I go. Know what I mean?
But, then...WOW...could this be the core of it all?
So, Carole, are you going to explore this further? If so, I'm waiting to hear from you about your experience. Thanks for sharing it.

Even though I only had 2 yes answers on the self evaluation, I am going to pursue it. First, I want to ask my doctor if he thinks I have SI Joint Dysfunction (SIJD), because he is the one who diagnosed me with mild hypermobility, but he didn't mention SIJD. I see him Monday. Then I think I will call Vicki Sims and set up a phone consultation.

I got this website from my Myotherapist who has another client who has had severe head pressure for 2 years. Head pressure wan't listed as a symptom on the website, but this gal met with Vicki Sims for a 3 hour evaluation and evidently she feels that this gal has it. I guess she is going to fly to Georgia for treatment or maybe was given a name of a therapist in the Bay Area who could treat her. That information I don't have, but I do know that she plans to go to a local prolotherapist. Anyway, I thought I would keep track of her progress.

This should help you find a video on youtube that demo's an set of simple isometric excercises that I use to align my si joint. Go to youtube. Search "si joint release". Look for one named "si joint" by bigmikemo. Most of the other videos returned on that search are quackery. Be careful.

The first time I did this routine I got a substantial reduction in pain level in the hip. This routine along with some strengthening of the transverse abdominals has given me some good improvement.

Because this routine is so targeted on the SI joint I feel pretty certain that because it worked so well that it is (one) of the problems.

SI joint inflammation does refer pain into the outer calf sometimes. It did on me. After several weeks of self treatment that referred pain went away. If I slack off on the excercises it wants to come back.

Hope this helps.

BATW, thanks for the information. I will check it out, because the more we can take care of ourselves the better. I bought two syrofoam wedges from my chiropractor and I lay on them for 10 minutes and they balance my pelvis. If I get on them as soon as I feel the pulling and tugging in my leg muslces, I can correct it quickly and feel immediate relief as you described. One wedge can be used to balance the sacrum too. Needed one for the SI joints. This group is a weath of information.

Just returned from a trip to a new chiro that a friend has tried and tried to tell me about and I just wasn't ready I guess. After trying the video recommended by BATW, the pain got better but still the joint felt bad and I was having some sharp pains I shouldn't.
Long story short, he knew it was SI and to treat it not low back. He doesn't crunch. He massages it all back in with the table movements. He said both Iliacs were out and he'd never seen that. Anyway, ten minutes and I'm feeling a lot better.
He helped my friend. She is the John Barnes myotherapist with fibro, cmp, hypermobility, and sijoint dsyfunctions.
My hope is that with his treatment and the exercises from BATW I can start getting this stabilized.
Please let us know what you experience Carole. What I liked best in that clinic is that the emphasis is on teaching self care.

Glad you found this new chiropractor and that he helped relieve your pain. I hope you can get it stabalized too.