It does not sound MPS related to me. But other people might have had it, you never know. It sounds pretty alarming to me. What does Google say?

New symptoms are always worrying and should never be dismissed automatically as part of mps without first considering other causes. With that in mind I have to suggest you see a doctor to rule out anything else (other than mps).

Having said that, the symptoms you describe sound very much like 'neuropathic pain'. Using the health questionnaires at www.painclinic.org, especially the 'LANSS Pain detect score' and the 'Back Detect Questionnaire', may help both understanding it and being able to describe it adequately for your doctor.

Neuropathic pain makes sense to me as part of MPS because the nerves can be irritated and possibly 'pinched' by trigger points. The good news is that the nerves aren't damaged by MPS, the bad news is they can (in my experience, anyway) be affected by MPS and produce that characteristic burning aching pain - especially the part about not being able to tolerate clothing or bed sheets. My hands and feet burn slightly right now, worse in my hands, with this yucky 'crawling ants' feeling. My shoulders are the worst -I can't tolerate any draft on them, even if it's mega hot I usually have to have a blanket over them.

The answers are twofold. Remember that your nerves aren't damaged in any way, just irritated by trigger points. Pain makes pain worse, as well, so it's essential to get adequate pain pills. The best 'over the counter' mix you could do would be paracetamol+codeine+ibuprofen but I doubt it would bring sufficient relief. Most people need something much stronger like amytryptaline or nortryptaline which is especially good for nerve pains. That's the first thing.

Secondly, I would suggest putting hot packs directly over the trigger points...which means locating them of course. For my hands it's usually TPs in my shoulders and neck; for my feet it tends to be lower back. It's worth 'getting to know' your TPs in those areas and try and find the culprits, or even just the 'rough area' so you can put heat on them.

In the longer term the trigger points causing the problems need attention; find out what's set them off and stopping as much as possible, and TP massage (by yourself but probably a professional trained in myofascial release). Once the TPs are tamed you'll be able to gently mobilise and tone the muscles and help prevent or minimise flare ups.

One final point... those doctors...is there anyone whose more sympathetic you could see? Or think maybe about switching practices? As a minimum you would benefit from a referral to a pain management consultant, an almost automatic referral I would have thought. If you've been to one think about asking for another appointment to discuss these new symptoms.

Whatever happens good luck. Nerve pains are truly miserable and help and support such as this group may help you through this rough patch.

Thanks for the replies. I think I will discuss this with my doctor at my next appointment. I was perhaps a bit overly negative - my doctor is good but I sometimes feel that the physical stuff gets minimized due to not having any abnormal blood tests or whatever (but MPS/Fibro doesn't does it?).

I think I have to be clear about what I want - which is basically a reassurance that this isn't a new problem and pain relief.

It does make sense that the MPS could be part of it - irritated nerves and so on.

I also wonder if it has anything to do with the hot weather - we have had warm weather here lately but this morning it is a tad cooler and I don't feel as much pain/irritation, although it is still there.