I agree, your doctor is a douche. Hope he listened this afternoon. If not, go to a dr. in Mexico, you can get anything there...

I agree! Try and get some Klonopin or Valium while your there.
Klonopin is the only thing that really quiets my muscle spasms. Lidoderm patches are my 2 choice.

What are you taking now?

Sorry to hear that stephisauni...

I am also a young woman and have to use a wheelchair, too because of the spasms and nerve pain I experience. It is really tough and so frustrating at times, but I hope you can find a way to hang in there and keep trying.

Perhaps you can find a new doctor? I had a GP who didn't believe anything was wrong with me and told me that I had to "deal with it". I refused to believe that and, since then, have got a new GP and am now working with two sports med. doctors. I know getting a new GP is sometimes easier said that done, though...

Best of luck! Hugs!

You aren't alone, because we are here and understand. I hope you gave the douche a piece of your mind and he listened. If not, find a new doctor. Sometimes it takes awhile but there are some compassionate ones out there who understand myofascial pain. Don't give up. You deserve to be heard.

I'm agree with the rest of these guys, find a new doc. To many of them are in the dark about myofascial and don't know how to diagnose it. I found a great article the really goes into detail about myofascial. I'm going to post it later today.

My Primary doctor questioned me and i felt like he didn't believe what I said. Well after my Pain management doctor and Rehab doctor added him to the notes and cc'ed him on all my visits to them he started to really understand that I'm not faking !!

Hang in there, you are not alone and we all believe you and can feel your pain.

I can totally relate. I am 22 and feel as though I am not taken seriously at all. This past week I had to go to the ER because on my appt last week I talked about how I was having awful breakthrough pain because my daily life was changing because of school starting. Since my accident and the chronic pain started I've been able to take most of my classes online and well, had to quit working. So, I lead a pretty boring lifestyle, for a 22 year old. I am on Oxycontin as well. Which I told him I think we finally, after a year of trying all sorts of things, have found what works for a sedentary lifestyle. But now because I'll be walking a lot more, driving longer distances, sitting in classes for 2+ hours at a time, etc. that the pain is obviously worse (chronic pain in my hip, lower back). He then proceeds to tell me he thinks I need to try physical therapy again, which didn't work after I had surgery last summer, which is why I started at the pain clinic in the first place, and he wants to start taking me off my pain meds. I freaked out. Anyway, the point I am trying to make is, I had to go to the ER on Monday because the pain was so bad, and I already had a terrible night the night before with no sleep, etc. (which leads me into other behaviors, I am dealing with recovery of anorexia, depression, anxiety). So after calling the pain clinic 30+ times and getting no answers, and no one calling back to the messages I left, I was venting to my therapist via text. She called my psychiatrist and well you know because of the pain contracts, no one else can prescribe pain medications, so they told me I needed to go to the ER. It was already 11pm, and after a 3 hour wait, t=they said all I could do was get a shot. I'm still unsure of what was in there, but it was great stuff, especially to help me sleep, but also for the breakthrough pain. I guess what I'm trying to say is I know how it feels and I support you and if you ever need someone to talk to,

Chase, I feel so bad for you and Stepis.

You guys are so young, I hope that your being so young will be in your favor and they can help this to resolve this for you both.

Keep posting you remember you no matter what these doctors say or make you feel, you guys are not crazy, your are not junkies you are dealing with a real condition.

and here is a gentle hug from a momma with a soon to be 20 year old. My heart just breaks for you two. I feel for your parents as this has to be rough seeing there children in so much pain.

((((((((((((((((((((((((((((((((HUGS))))))))))))))))))))))))))))))))))

Steph and Chase,

You have my sympathy too. I don't think doctors realize how much fear is a factor here. I hate that feeling when the pain pill prescription is running low and I start to worry if they will refill it in time. (Sometimes it takes days for my pharmacy to do that.) Or when I was moving and had to get a new doctor to give me a prescription--that was anxiety provoking too. Thinking ahead to the pain being bad and not having the right medication can freak you out more than just feeling the pain.

The national press has been publishing all these scare stories about addiction to prescription drugs, so I think doctors are feeling pressure on that account. My totally jaundiced view is that now the DEA is about to give up on prosecuting marijuana users, there has to be a new demon drug trend they can battle.

I really hope you got some support (and you too chase) and got the meds you needed. Sometimes, the only option for long distances is a wheelchair (I'm not going long distances, therefore avoiding the dilemma and embaressment). This condition is unlike anything I've ever encountered, the pain is so horrific and yet it's not a 'clean' pain like a burst appendix, it's so hard to describe. I use the 'Health Check eBook' at the painclinic.org on the top left hand box on the homepage; all internationally validated questionnaires and brilliant to track our experiences with pain and disability over time. The one to use most is the 'health related quality of life' one, as it shows the impact across a lot of areas. It might help show your doctors how bad the suffering is.