Is there someone you can call to have them help u with the mestinon? Please don't hesitate to call 911, if you feel that you need to. I'm praying for you. Keep in touch.

There is nothing wrong at all with calling 911 and certainly nothong to be scared of, these are the situations that they are there for. Be sure to take care of yourself, if it means heading over to the hospital, thats fine. I have had 4 trips there so far, the doctors and nurses are great and really did help.

Please keep in touch and certainly you are in our prayers and thoughts.

Joe

You need to get to er and tell them you have mg immediately.
Yes you are scared
The sooner you get there the better.
We need intervention to get better.

I don't know you, but it is hard to accept that you are being serious.

I'm completely serious, but I am going to get help. Thank you.

Brianna,

I am so sorry for the insensitive comment of tediii; please don't let his comments upset you. Brianna, I remember you from a couple of years ago. This site is to be used to encourage and support one another.

Only you know how you are feeling. It is not our place to judge you. Please don't allow his rudeness to make you feel like we don't think you are for real, or that you are not wanted here on DS. Please feel welcome to post here and vent here. We are here for you.

Tedii, I wonder if you are for real. If you really understand what it's like to not be able to move or breath. Tedii, before you post next time, make sure you read the "rules of the road" just to the right of where you post. There is a REMINDER for all of us to remain positive and helpful.

Barbel

It's clear you've had this disease for several years now, and you know your own body better than any of us.

I know you said the timespan isn't working effectively anymore ; are you still taking prednisone ? Your disease progression may have jumped to the next level, or perhaps your body is battling a cold/flu or seasonal allergies?

Did you ever have a thymectomy?

Anyway, it sounds like your symptoms are dangerously close to crisis-level ; don't play around.


I am glad you are getting help, please keep us posted!! :)


I am not sure the intention of Tediii's comments, but they appeared insensitive ; that is NOT the consensus here.

Take Care of Yourself. Chris.

Call your Physician and tell him you can't wait 2 weeks, tell them your symptoms are impacting your nourishment -this is what got me into the Mayo Clinic earlier than my scheduled appt. I agree, if you are by yourself, call an ambulance and go to ER. There is always someone to help if you reach out. MG is a disease that forces you to advocate for yourself-fight, don't give in. Best wishes sending to you

I hope you were able to get the help you needed. Hope you fill us in when your able. No matter where you are I'm sending prayers for your support and you've been though of.

The ER will get your neuros attention. We can go down quickly so don't wait too long..
Wellness,