I've got a question for all of you. I am scheduled to see a neurologist this week. I have had MG since 1952 and (praise the Lord!) it has remained purely ocular all these years......only in my left eye but about a month ago it has "moved" into my right eye and my left eye is stronger than it has been in YEARS! Pretty much symptom free. It has been 15 years since I last saw a neurologist and I have questions about the various tests they perform. First of all, I see posts from various people on here who speak of their test results all being negative but they are presenting with generalized MG. And, I also see replies that say "negative test results don't mean anything and positive test results don't mean anything". So, what is the purpose of being tested if you can't go by the results????? Thanks! Carolina
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I have several side effects from this drug. Diagnosed about 18 months ago, only issues were droopy left eyelid and occasional double vision. The last few weeks, eyelid drops almost everyday, so started taking this drug 60mg 3-4 times daily. Now, when I talk a lot, or eat meals, tongue feels swollen, talk with a lisp, some words I cannot pronounce, have to urinate every 20 minutes, up 3 or 4 times...
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