Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Gentle hugs and prayers for better days,
Rosie
With MG, we have to be pushy and remind our doctors that we have this disease and need to be treated as the symptoms come and go. Sometimes going to an emergency room helps get us into the right treatment, and other times it just helps with the immediate problem and doesn't get us into the longer term treatment.
Good Luck--and get some help!
take care
Ann
Also, a couple of members have offered that you or your mother could call them: annkemp and cgreens. All four of the people I have mentioned are long time active members, well known to and respected by the rest of the group. (You can put each of their names into the search bar and see contributions they have made over time.)
If you are not comfortable calling someone yourself, can you have your mother call? This is too much for ANYONE to handle alone... especially for a young girl! We are ALL in your corner, Brianna!!!
With prayers and gentle hugs,
Rosie
please keep us posted.
Ann
Hoping to hear from you soon!
Marcela