Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
The air is cooler today, around 70f. That alone makes me feel better. I could stay in the shower all day long. It feels so good to have the warm water flowing on my tired, sore body. The only thing is that I feel terrible afterwards.
What about you? What makes you feel better without causing other problems?
What about you? What makes you feel better without causing other problems?
A Smoothie.
Going out to eat.
My friends on DS.
Protein and Vegetables.
This is a great thread! Thanks, Jerry!
Coffee makes me feel better!
Coffee for sure, lots of laughter, and rest
-sherry
PS...oh how I miss hot baths and showers!
My dog! All of the dogs. My friends' dogs, strangers' dogs on the street who say hello to me. Today my co-worker brought her dogs into the office and that's making my day.
Laughing. Nice people.
Drinking enough water, and eating often.
Yes, 70 degree weather. Low humidity.
And running! I'm a bit crazy about that one. I've been addicted to running for about 18 years and I'm so happy that I can do it again (at much shorter distances and slower speeds than before, it's better than nothing). Or walking, I'll go for a walk too.
:)
Jerry, you might try smoothies with vegetables and fruit. There was a string with recipes. At least it might help if you didn't have to chew until you got used to the taste. My husband grills a lot of the veggies and likes even brussels sprouts stuffed with parmesan cheese now. His diabetes changed our diets. b.
My wife and I go swimming at the YMCA two to three times per week. The cool water allows me to get the exercise that I need and cannot get otherwise. I usually swim laps until I get tired. That allows me to get my heart rate up and do some deep breathing. Then I use the dumbell shaped floats to do all sorts of arm, abdominal, and upper body exercises. Afterwards, I feel good for the rest of the day, as long as I don't run myself down again in hot weather.
I prefer a slightly warm bath to a shower, because it eliminates any balance and light-headedness problems, and when I take a shower I keep it only slightly warm to slightly cool. If the water runs hot in a shower I can feel myself wilt, so I let it run until it stabilizes.
What makes me feel bad is heat and hard physical work. I feel fine in the 60s and 70s F and OK in the lower 80s. From 85 to lower 90s I stay out of the direct sun as much as possible. Above 95 I don't go out unless I have to.
I wear straw hats with brims instead of the "baseball" style because they provide shade and are cooler. To keep cool, I usually wear some light shorts and a white tee shirt around the house and my property. When the weather cools down I wear knit slacks or, if I'm going to some outside work, I might put on some jeans.
When doing physical work, if I pace myself and rest as soon as I begin to feel a little tired, I can last a long time. However, if I wear myself out, it may take the rest of the day and even the next day to recover.
I recently bought a couple of the cooling towels and they help a lot when working outside. You wet them, shake them and they cool off. I drape them over my shoulders. They provide a good barrier against the sun. I also have my "survival pack", which is belt with an insulated lunch pack and two water bottles. If I have to leave the house in hot I fill the lunch pack with frozen gel packs and the bottles with half crushed ice and half water. Sometimes I lay it in my lap with the lunch pack against my abdomen when driving in very hot weather.
I hope you find some of this useful.
Tom
I like the ice pack belt idea and swimming. I might check into the Y to see if that would work for me.
Jerry
I cold brew iced tea, just by putting tea bags in water in the fridge overnight. Yonanas has been wonderful, I get a cools sweet treat that's healthy and full of potassium.