Kerry,
I listened to your video the other day and, yes, my voice does much the same thing (although my voice doesn't crack). When I'm having a lot of weakness I sound like I am hoarse. If I stop talking for a while it returns to normal but will get hoarse again after speaking a few sentences. I can count on having this problem the day of ivig and for a few days after. It makes sense if you consider that the vocal cords are most definitely controlled by voluntary muscles.
Cathi

Hey Kerry,

My voice also gets very raspy at times, even been told you sound like you feel bad.. Find when I do a lot of talking it is very raspy. I agree with Cathi.. it is part of MG too many people do it!
Annette

Hi kerry, i just listened to your video. My voice also changes, when i am extremely tired, i cannot speak at all, i also get really nasally. I have had periods of chocking when i try to force, fast speaking or i am upset and try to speak. 15 months ago, I had a crazy throat problem, that took my voice away from me 2 weeks, when it came back it was very weak for a while. I think it is typical for MG, Thank God for this site. I wish I had found this site when I was first dx. Very thankful to be here now.

Have a good day,
Maria

Kerry, I also have problems with my voice. I get hoarse and feel like I have something caught in my throat. I have to keep clearing it.

This happens when I talk alot (whitch I tend to do). Aaaahem, I think I have a furball caught in my throat.

Gail

Thanks for all the responses!

Oh for sure! I have several different types of voice changes. Sometimes I sound "raspy-sexy", sometimes "like I have bronchitis", sometimes just "weak", sometimes "nasaly", sometimes "whiney" and other times I sound "sweet" ... I take my mestinon and it usually fixes it around 25 minutes later. I am thinking my voices are just trying to keep up with all my personalities ;)
My experience is that MG can change your voice quality and tones in the same way your speech can slur... sometimes it's the S, other times the L... and then there are the times I just sounds like I have a mouth full of rocks. My Husband finds this symptom to be the comical side of MG.... I just take my mestinon and tell him to "CHUT UP"!

Becca,
Thank you! I just read your post and you know how even when the doc says "this is what you have" you still wonder if some of the things you experience are just crazy? I so can relate to the varying sounds that are a problem with the slur. It seems odd that I can't just identify words that will cause me trouble and avoid them but they CHANGE. The funny thing is I almost without fail will have trouble with my name, doesn't that just figure?
Cathi

Yeah, my voice has changed. I love to sing, and have to really belt it out from my diaphragm to get out some good notes without the raspy tone.

Be well.

We enjoyed the video,very helpful information.

My voice often cracks, but maybe not as high as yours goes. Then I progress to slurred nasal speech. My voice and yours are the only MG voices I have heard so I certainly am no expert!

Kerry - you need to find a neuro who knows about MG. You sound just like I did when in the throes of the disease. Your voice is "classic" MG, NO question about it. My colleagues at work would laugh at me when I was on the phone because I would lean backwards and tip my head up towards the ceiling while talking. For whatever reason, it made speaking a bit easier.

How much Mestinon and prednisone are you taking right now?

Curt

Curt:
2,000 cellcept, 60mg mestinon every four hours, 20mg pred. PLEX weekly. Plus other small fiber meds.

The reason I posted about the voice was I seemed like MG caused to me. I am using other to verify my thoughts.

Also, thanks for the responses everyone!

Losing my voice always seems to be my first sign of trouble. Once it starts to go the rest of the day is shot!