Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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Muscles & Bones
/ Myasthenia Gravis Support Group

urinary tract infections

norcaldad
norcaldad
so when i left ucsf, they gave me a parting gift of ecoli in my urinary tract.
My doctor handed me a list of antibiotics that dont do well with myasthenia, ... So when my left testicle swelled to the size of large apple, and it felt like someone was kicking me every 3 seconds right there, i went to see a urologist, when he read my records and the 2 page's of antibiotics i couldnt take, "what a challenge".. septra didnt work, cefuroxime didnt work, now they have me on amox-pot/clav1000mg
it seems to be working, gives me the itches, and its on the dont take list, figure that one out.. Have lots of energy, plus they gave me 100mg tramadol er for pain, gotta be careful with those...
So it took 31/2 months of living with a witches cauldron in my prostate, which exploded into my testicle.
I can sit down with ease now, for once myasthenia symptoms held off for a minute, except for my breathing which i figure i'll have forever
nothing but love for all on this support group.
bweeds
bweeds
Sounds a lot like what my brother- in- law went through before the correct diagnosis of inguinal hernia. Only his started with suspected kidney stones. He doesn't have MG amd all the rest. But the medications, timeline, and discomfort were similar.

Here's to feeling much better for a long time,
b.
art-chick
art-chick
A word of caution: I was put on tramadol for my thymectomy surgery and cannot get off of it due to it's effect on my respiration. When we attempt to remove it, I cannot get enough breath. My respirations went to 37 per minute and I went to the hospital. I also couldn't walk, started choking and basically looked like I was in a full MG crisis but I was not. Just a half of a pill stopped the whole chain of events within 2 hours.

I was on it about a month before I started the taper. Now, it has been 8 months. My neuro believes tramadol may need to be put on the contraindicated list for myasthenics. Because you have respiratory issues like I do, you are more at risk for this effect the longer you are on tramadol since your body becomes addicted to it due to it's ssri/snri properties.

That being said, it is NOT a usual reaction. It is normally a sign of overdose and not withdrawl so no one had ever seen it before me...

debra
norcaldad
norcaldad
thank you very much debra,,, i've noticed that breathing is much easier when on tramadol,, the information you have given me is taken well, a little scarry. i'm going to start tapering off now. Again this support group has helped me and others with dealing with mg.

thanks again