Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Chemotherapy for January 2014
Because I spent time in the hospital during December for plasma exchange, my January Cytoxan chemotherapy orders for my Myasthenia Gravis had to be reissued. The reissue process began the week after I left the hospital and only took a little while to complete all the paperwork and communication between doctors.
I was originally scheduled for January 8, but had to reschedule because of bronchitis and possible pneumonia in my right lung. It took three different antibiotics to finally get over that crud. For myasthenics, the key is to catch infections early and get proper treatment. We also have to be careful with antibiotics because they can quickly make MG worse. I was able to have my treatment yesterday, January 22, 2014.
The chemotherapy went well as usual. I receive 1.35 grams per month by infusion and will be on this treatment for the foreseeable future, supplemented by plasma exchange as needed.
I have been working on my 2nd book about my MG story. It is almost ready and I hope to publish in early February. The title is Body Disabled: My Journey through Disability and Trust. I will make a post when it is published. Thanks again for your prayers and support.
Because I spent time in the hospital during December for plasma exchange, my January Cytoxan chemotherapy orders for my Myasthenia Gravis had to be reissued. The reissue process began the week after I left the hospital and only took a little while to complete all the paperwork and communication between doctors.
I was originally scheduled for January 8, but had to reschedule because of bronchitis and possible pneumonia in my right lung. It took three different antibiotics to finally get over that crud. For myasthenics, the key is to catch infections early and get proper treatment. We also have to be careful with antibiotics because they can quickly make MG worse. I was able to have my treatment yesterday, January 22, 2014.
The chemotherapy went well as usual. I receive 1.35 grams per month by infusion and will be on this treatment for the foreseeable future, supplemented by plasma exchange as needed.
I have been working on my 2nd book about my MG story. It is almost ready and I hope to publish in early February. The title is Body Disabled: My Journey through Disability and Trust. I will make a post when it is published. Thanks again for your prayers and support.
Hugs
You can view Kerry's video account of his MG journey on YouTube. He has some clever ways of measuring and comparing his strength. Please know that he is one snowflake who has walked a very difficult road which most of us will be spared. But, there is so MUCH to learn from his regular videos.
Thanks, Kerry!!!
XOXO Rosie
Your strength and commitment to your journey has given me a lot of strength and I want to thank you for that. I am now looking at switching over to Rituxan form Imuran and have been counseled to pursue a thymectomy.
Thanks again for all that you have shared, it has made a difference.
God bless
Joe