Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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krbunn 08/01/2013

I have several recent blogs at krbunn.blogspot.com
and a new video at http://www.youtube.com/watch?v=75HYhX4WUrg
that talks about my PLEX and Cytoxan treatments.

I go back to the neurologist on Monday.

--Kerry

cgreens 08/03/2013

Thank you for continuing to share your story...

Kerry, you have got to figure out a way to lose some weight and get some exercise. You are saying you can't walk any distance. I wish you strength and success! Peace always old friend. TJ

txkiki53 08/03/2013

Kerry thanks for sharing. I tried the finger snap. H,mmm my left is loud my right not and it is harder to do.
Take care my friend,
Annette

joefnh 08/03/2013

Kerry thanks for your updates, I have found them very informative. It was your YouTube video of not being able to do a sit-up that convinced me that I most likely had MG. I was experiencing the same issue.

Joe

snowbeltfolkie 08/03/2013

Thanks, Kerry!
Give us an update, of your Neuro appt.
- Ross

lindsayamaral 08/04/2013

Thanks Kerry! I greatly appreciate your videos. I know how much muscle strength it takes out of you to make them.
God Bless You,
Marina

ahpotts72 08/04/2013

Thank you so much for sharing your videos with us. I was watching those long before I ever met you via DS. I have tried the heel walk and can't do it. Months ago when I first watched one of your videos I tried to do the sit ups, the heel walk, the box of pennies (except mine was a jar of change) and couldn't do any of them. Now I tried your snapping test and I am in the same boat as you. I can no longer whistle like I used to either.

Anyway, thank you for sharing your insights and experiences.

Sending hugs
Angie

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