Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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Thymectomy Question

Rankin
Rankin
Have any of you had immediate positive results following your thymectomy? Just curious. Thanks.
MaureenNY
MaureenNY
Hi there, I only had my thymectomy on 7/8, initially I felt stronger, but that may have been the ivig I had before surgery or the distraction of surgery symptoms. The past few days I've had symptoms return. I've heard that it gets worse and then levels off... At least that's what I hope for.
deleted_user
deleted_user
Hey there....I got my thymectomy about 7 years ago now very soon after my DX...Didnt see immediate improvement but over a course of 6 months between that and prednisone and mestinon I saw big improvement with eyes and fatigue etc...of course since then have been ups and downs, had to stop mestinon due to bad stomache etc but felt it did help me and glad I got it...Everyone is different and as we know MG is a roller coaster ride everyday but as I said I feel it did help..Good luck
annkemp
annkemp
None immediately
I noticed improvement one year after .
deleted_user
deleted_user
I had about six weeks of improvement immediately after my surgery, but then resorted back to the way I felt before my surgery. It's been a year since I had my thymectomy and I'm still not sure if it has helped or not. Without tapering off other meds it's hard to tell
Michele
wbdolphin
wbdolphin
Please take into consideration that many MGers that are symptom free, or in remission, won't be as likely to be active members of MG internet support groups, myself excluded. Hope all is going well.
krbunn
krbunn
I had my thymectomy 04/03/14. I dropped from 15mg of prednisone daily to 12.5mg two months later. So far, I am able to stay on 12.5. All symptoms are still present.
--Kerry
MaureenNY
MaureenNY
wbdolphon....Thats very true, Social media mg pages are more balanced as they are not "support groups" so much as a" part" of peoples lives, you get very different feedback there then you do here, because he perspective is quite different.... Not better or worse.. just different....
jimmijane
jimmijane
Hi, l had my thymectomy just weeks after Dx, l did not see any improvements for a good 18 mths ,and was 4/5 years post surgery that l was drug free.
Although not entirely symptom free (l still tire more readily and do not have my pre mg strength ) . l manage with more rest. l have the odd ick day and sometimes l have a few days where l seem very fatigued but no major symptoms.
My voice is always the first to suffer ,and then swallow ,but not enough in the last 10 years to warrant drug therapy again as far as l'm concerned anyways.