Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Today my neurologist suggested this as a possible reason for my continued muscle weakness. I also had more EMG studies done today and they showed that I am doing quite well MG-wise.
I will research this when I am less tired, but wondered if anyone else has encountered this. I was on 50 mg Prednisone for months, then a gradual taper to 15 Mg over the last year. He has suggested that I now change to 10 mg for three months then down to 5 mg for three months and then see him again. Of course, I am to phone him if I have any trouble with this taper (so far, so good on tapering for me).
I would appreciate hearing about anyone's thoughts and/or experience with this.
Thanks family,
Claire
I will research this when I am less tired, but wondered if anyone else has encountered this. I was on 50 mg Prednisone for months, then a gradual taper to 15 Mg over the last year. He has suggested that I now change to 10 mg for three months then down to 5 mg for three months and then see him again. Of course, I am to phone him if I have any trouble with this taper (so far, so good on tapering for me).
I would appreciate hearing about anyone's thoughts and/or experience with this.
Thanks family,
Claire
I had a muscle biopsy done to confirm my Steroid Myopathy. I developed muscle atrophy due starting at 60 mg Prednisone and then down to 40 mg over a six month period. I saw fairly quick recovery after tampering down to 20 mg Prednisone.
I have developed more issues with Prednisone than any other medication. I also have a very difficult time with tapering up or down. You could also just be having an issue with tapering down, especially when you get down to low dosage as you are now.
Wishing you the best.
Bruce
Are you still at 20 mg? I have had issues with Prednisone but they have been the expected ones....weight gain, moon face, insomnia, and I have been taking alendronate and Calcium/Vit D supplements to protect my bones from Prednisone.
i must say that I am anxious to get off this drug if possible (but then, aren't we all, lol?)
Here's to good days ahead as you continue to taper.
hugs, Larissa