Hope you feel better soon.
Hopefully the IVIG will kick in, for you real soon.
- Ross

I get that same feeling in my upper center tummy, mostly after I eat or drink. Apparantly a person can have upper dysphagia and lower dyshagia. I recenly had a swallow test and the therapisst told me they can do a complete test, but it is done by a gastroentrologist. . Mestinon gives my absolutely awful gi side effects. I have medicine I take for nausea... as needed and it realllly helps.

Oh Debbie,
I'm so sorry you're feeling bad. If you feel like sleeping, SLEEP. Your body is trying to tell you something. Maybe a call to your neuro would be in order. I know you've been in Milwaukee for a few days and probably got behind on some work but get some help or just leave it. Deb, I worry about you.

Luv ya, Gail

I get that way when my potassium drops below 4.0

Debbie, I hope you are feeling better soon. I too think you could give your dr. a call. The clue about the potassium would be really good to follow up on. I know that can actually be dangerous, at least they used to think so. Hope you are feeling soothed soon. Take care, love carla

Less pain today. Interesting note about potassium, as I had Lasix following my treatments this time as we used 500 cc extra fluid. My new med may cause a rise in potassium so I may balance out.

I did better with the sleeping yesterday, and will call with the chest/tummy thing on Monday, if it is still bothersome.

Interesting Debbie. I had ivig on Wednesday and can't seem to stop napping. I've slept much more than normal since Friday. It does make you wonder. I've also had nausea, not terrible but there. I'm trying 120mg of mestinon every 4 hours today. Will see how that goes.

Good to hear you are better today. Let us know what your neuro says about the chest/tummy problems.

hope you feel better soon
Love Theresa

When I did IVIG I always felt tired for two or three days after. It got so that as I was doing better and better in my recovery, I would have an IVIG and feel lousy for a few days.

I think I read somewhere that the cells that we are getting in an IVIG are very large, and they tend to suck up a lot of water once they get in our bodies, so you get a little dehydrated unless you drink lots of water. Maybe that makes you tired? Or the effects from the Benadryl?

I just didn't like the IVIG, and wondered if I would get better outcome if I just took the day off and rested. I also wondered if I could just take the cash ($10,000-20,000) for these treatments and go on a stress-free vacation. What would that do for my MG?

Certainly, a nice sum of money like that would allay some stress. And since stress is connected to how my MG is doing, I think i can safely say that infusions of $$$ are what I prefer, not IVIG... ~joe

go Joe,

In our dreams, although you are probably right.

Benadryl, even small amounts, turns me into a zombie for 24 hours. When I have needed it for allergic reactions, they have had to give me the liquid so I can take smaller doses. b.