I take 45 min rest when I get home from work. Saturday and Sunday I get up for meds and around 3:00 pm for the day. I think it helps keep symptoms down.

to tell the truth that is all i did on this weekend. I slept, ate, bathroom brakes and showers. You def not alone there.

I have had a lot of days where I slept a lot. I guess sometimes, our bodies need extra rest. Rest is key to not overdoing it with MG. Barbel

Thanks guys! Now I don't feel as bad. It's So hard for people to understand why I cannot wake up. They try to understand but deep down I feel like they just think I'm lazy or just "milking" it. Soooo frustrating!

I slept one whole day each weekend before I knew I had MG. Now I going ahead and rest and don't feel guilty.

I was diagnosed with MS right about the same time most people retire. My neurologist, psycotherapist, and family all urged me to retire from life-long career as the directer of a non-profit corporation and counselor. I balked at first. But some unexpected events resulted in my retirement in spite of my reluctance. It took me a week or so to realize how much my work required, and how fatigued I was.

Now, a year later, I have made it to January without any serious health issues, and I try to take a one and half hour nap every day. Two years ago, while still working, I was hospitalized 3 time between September and March.

Rest as much as you can. The better you are rested the stronger your body will be.

Good luck, Bob

Would be smart to mention it to your doctor, as it can mean something or nothing. Maybe it's even just a side effect of a medication.

Your body is telling you something. If I push myself at all these days I find I sleep a lot for the next several days, up to 12 hrs at a time with my body waking me at 3-5 hr intervals for Mestinon so I can breathe again. If I fight the sleep my body rebels hard.

When my mg is at it's worst I sleep more. I feel it is the fatigue that comes along with mg... Rest when you can!
Annette

I "slept" a lot before my thymectomy and ivig. "Slept" was more like passed out. Sleeping did not help me to feel better. It means the MG is overwhelming your system. Before ivig I couldn't work or concentrate, fading by noon. I don't know that ivig is for you, But it has improved my life greatly. I no longer sleep during the day. Hope you find the right mix.
Be well, and hope for better times,

Nothing to do with my medications as I slept for years without it and rest does refresh me.

I find myself sleeping more than I used to. My neurologist told me I need to start taking regular naps, something I have not done since early childhood.
Also, sleep apnea, which I have, could be making you tired if not treated.

I started treatment for sleep apnea a few months before MG diagnosis. The CPAP machine makes my sleep much much better. I think the sleep apnea was likely part of undiagnosed MG, but I really have become dependent on the machine for restful night sleep.

When my MG was at its worst and I had trouble breathing most of the time, the machine was great to fall back on to let me "rest up" my breathing. I have an auto type machine that pushes air in when I breath in and relaxes to let me breath out easily.

I use coffee in the morning to perk me up--it helps too.

I too sleep a lot when my symptoms are more severe.Sometimes 8 hours during the day and 12 hours at night.I am learning to rest more frequently and not over do it.