How many grams did they give you, each time, Bear?
- Ross

I feel better in some ways and worse in others sometimes. Often I feel stronger but as if I also have a mild case of the flu (fever, headache). There was a time I got very nauseated that night.

What side effects are you having? I am also interested in the dose you received and how long the infusions lasted. Here is a question we don't talk about very often... What was the brand of IVIg they gave you?

Love, Becca

You know I am not sure there were 5 bottles each time. They were small bottle.

Can you find out Bear? Call and get the grams each day, the total grams you received and the name of the IVIg.
I take a picture of the label with my phone each time I get infused.
What side effects are you having? Are you feeling better at all?

I am not sure about brand name I think it was western something Becca. I know I was in the chair for 4 hours a prisoner with a hose attached. My sypmtoms vary feeling like the flu and the things you said also sweat like crazy just plain bad all over. And I can't say right now I feel really anything guess it takes a while. I don't mean to complain I'll suck it up because I know I have to do it. And I have you all to complain too and you listen.

We don't mind the complaints... heck I am asking you to! ;)
Are you still taking benedryl and tylenol?

Benedryl at night to sleep and just deal with it during the day I have to work.

Benedryl can help with the side effects, but it sometimes makes me feel poopy as well. Tylenol pm (has benedryl in it) gives me a little hangover the next day.
What about tylenol? If you have aches and low fevers this really works well for those.

Of course, get doc's opinion on all this.. I'm just a friend! ;)

Makes me feel poopy, I am just a good ole country boy never heard that one. I will ask but right now tired of Doctors I go back in a month may just wait. And I will call and ask what the brand name was and what grams. Maybe tomorrow will be better like I told them I am not expecting much it would just be nice to have a day without feeling any of this as we all do here.

A break? Just a moment of denial? Those would be nice huh! Tried it before, four hours later the mestinon wears off and then there it is... back in your face!
Love your attitude Bear! You will get through this and live in peace with it! Remission would be great too, of course! ~ Please remind me of this when I need it too okay? ;)
Take it easy and keep it up!
Love, Becca

I'm sorry you're feeling bad Bear. The worst I ever felt was after the loading dose (which is what you've just had). Mine was only two days though. I hope you feel better quick. Definitely try the tylenol and be sure you are drinking a lot.

We will listen, you just talk. It's better to get it out and we understand.
Cathi

Oh I meant a break from Doctors I wouldn't stop my medicine there is a chance it will give me the control over it I need. And yes Becca I will remind you when you need it I am not going no where. I really do like you all !

Well Catnip like your attitude drinking alot that sounds good and yes I know you meant water darn it. And thanks a loading dose haven't heard that term used for this. That is what I was thinking I am starting a new medicine and all those IVIG just alot going on with my body right now.

Heehee! I did say "drink a lot" didn't I? Yes, water, and lots of it. When I get sick of water I hit the hard stuff, orange juice. :-)

Bear,
I am jealous as when I was getting IVIG mine was 6-8 hours... uggg but every time they tried to speed it up I would get sick.

I know you are glad to have the 5 over with... It really does help cause one day you will realize wow... I know for me my eyes were more open and I was not as tired.

Look forward to hear how you are doing, even if it is just to rant...
Annette