I suppose you already know that you are supposed to be off mestinon for a period of time before the SFEMG? And not have any stimulants, such as caffeine, chocolate, etc. At least this was what I was told before I had mine.
Hopefully someone else will chime in and give you the correct information as I don't recall the time periods you are supposed to be off of mestinon.

Jerry I just had my SFEMG in Boston 2 weeks ago, its an easy procedure kind of boring, the very thin needles can be just a little uncomfortable but at least for me it was not painful

You should stop your Mestinon a good 4 days or as sooner if you can before the test. Some say longer and some say shorter

As mentioned I would avoid all sources of caffeine, tea, soda, chocolate & coffee. Avoid other stimulants that can be found in certain medications, I would avoid Pseudoephedrine which can be found in various cold medications.

To just be safe avoid the food family called nightshades which include
Potatoes, tomatoes, sweet and hot peppers, eggplant, tomatillos, tamarios, pepinos, pimentos, paprika, and cayenne peppers are classified as nightshade foods. A particular group of substances in these foods, called alkaloids, can impact nerve-muscle function

Within these food types the alkaloids can also affect the NMJ which might affect the SFEMG test.

The day before the test give both of your arms, forearms and hands a good workout, this will assure that the muscle being tested is being presented somewhat tired, this helps the quality of the data during the test. Be sure to be good and warm before you go in for the test.

Joe

Thanks for the update, and please let us know how it goes next week. Wishing you all the best.

Joe
I read your post about your SFEMG experience as soon as I got home yesterday.Thanks for the info

Thanks Tim and limpnoodle for your help as well.

oh and no one told me about stopping the Mestonin.

Hi Jerry!
Everyone's advice is right on target.
I wish I'd known better, way back when.

If I were to be tested with SFEMG today?
The waves on the screen - would drop off the bottom of the screen.

I just found the Neuro's notes, from my SFEMG in August, 2007.
"Conclusions:
No myasthenia gravis.
Muscle cramps benign, not due to MG.
Tingling-sensation is probably due to anxiety.
Repeat AChR tests, blood test is probably false positive.''

See what you run into?
- Ross
Refrain from Mestinon, prior to testing, to the best of your ability.

Ditto what Ross says--I wish I'd known to stop mestinon and avoid all the stuff with the mestinon magic in it beforehand, as well as get a good workout/hot bath/etc. in beforehand.

Oh Ross! Unbelievable! You are a perfect example of MG! I bet they don't think that anymore!

Thanks for all the advice.
I did stop the Mestinon yesterday and called my the doctors office today. They called back to say you guys are right "stop the Mestinon."
If it weren't for you guys I would not have known.

It's a shame you have to go to fellow patients for medical advice, but I have learned that it is usually good advice. Let us know how it goes for you Monday.

Hey jerry, how did your test go?
I had mine today as I have a new neuro and she wanted to be sure.
Sadly ... I am happy to report the test was abnormal. Yippe. So continue on the mg path".. At least finally a positive test . Lol
Annette

kiki, how many times have you had the SFEMG? How long have you had symptoms for?

I had the first one almost 4 years ago and was not told to stop mestinon. So the first x was negative This x was told to stop 24 hours but I stopped 3 days before, It was a struggle but glad I made it through and got the needed results.
Annette