Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

1,709 Members

7,414 Posts

0 Online

krbunn 04/19/2012

It has been a rough week at Vanderbilt for me so Cathy has been the blogger. I almost waited too long before coming to the hospital (that was dumb)! I have now gone from feeling to horrible to terrible--slight improvement. Tomorrow is my fifth PLEX and after that I have my first dose of IV Rituxan.

--Kerry

larissam 04/19/2012

Kerry please thank Cathy for keeping up he blog, she's doing a great job!

Wishing you good days ahead & a safe trip home.

Larissa

mermaid3 04/19/2012

Glad you made it there in time..good luck with treatment..keeping the prayers going...!!!

snowbeltfolkie 04/19/2012

Hang in there, Kerry!
That PLEX will kick in soon!
- Ross

deleted_user 04/19/2012

Thanks to Cathy for keeping up. Best wishes and prayers for you to feel better. The research on the Rituxan looks great.

Marvin

Thirteenblessings 04/19/2012

You and your wife are both doing an awesome job. Hang in there friend. I hope you feel better soon. In the meantime I pray for you to be comforted. Love, carla

Alonetilnow 04/19/2012

Hang in there Kerry. We are all with you in our thoughts and prayers. I hope the rituxinab. Please keep us updated on your progress.

newmugg 04/20/2012

Thinking of you Kerry. Hoping the next plex is easier and your new med of Rituxan does the trick.
hugs,
sherry

deleted_user 04/20/2012

I have read your blog by Cathy. When I receive Plex, they only will give it to me in-hospital. Further, I also have 5 doses over 10 days. It seems to me that this program would be a lot easier for you to tolerate.

Marvin

cgreens 04/20/2012

You can count on us for support! I want you better.

With you, I have three or four people on the top of my want list now for betterment...Sending you strength friend
TJ

lojos66 04/20/2012

thinking of you,take care.
Loirraine

txkiki53 04/20/2012

Kerry & Cathy
Prayers coming from Texas for better days... Thanks for letting us know how you are doing.
hugs,
Annette

catnap2 04/20/2012

Kerry, I'm so glad you got to the hospital in time. I hope PLEX went well and you are moving on up from terrible. Can't wait to see how the rituxan goes.
Love,
Cathi

DebbieF777 04/20/2012

Kerry,
I appreciate your blog very much. Prayers said for you and Cathy for strength and wellness. Keep us posted as you are able.
Deb

jeanniea 04/21/2012

Thinking of you and hoping the plex kicks in quickly for you.

Jeannie

krbunn 04/21/2012

Got home about 11PM Friday. Thanks everyone. Doing OK. I will update everything later.
--Kerry

Join the Conversation