Try mgfa.organization list of drugs to avoid I don't know how to do link stuff sorry

I had several sites saved and half of them also were no longer available. Here are a few I could find, I like the second one.


http://www.health.state.mn.us/divs/fpc/cww/D02_Transmittal22ExcerptTableII.pdf

http://www.mginc.mb.ca/docs/MG_DrugList_Final-1.pdf

https://wiki.umms.med.umich.edu/display/NEURO/Drugs+to+Avoid+in+Myasthenic+Crisis

Thanks for the help and links folks.

I used to use an Australian MG site that isn't active any more. It is easier to find drugs to avoid, harder to find info on other important indicators. I get weaker with low blood calcium, low potassium, low Vitamin D and high TSH.

I'll just have to use my powers of persuasion and tell him how I had a choking attack from a Lifesaver (ironic, isn't it) as it produced more saliva than I could handle. I was with a group of my fellow flute players at a year-end party. I hadn't drunk anything but water and the room was cool. I said "Don't mind me - I sometimes have choking problems. At least it didn't happen during the concert!".
Flutebell

I found my old printout - it was MG group from Illinois. Here is a good link that mentions too little thyroid: http://www.myastheniagravis.org/about-mg/what-makes-mg-worse/. I looked up my old notes and found I had increased swallowing problems with food coming up the back of my nose when my TSH was only slightly elevated.

Just to make life more interesting I'm seeing the neurologist I've been waiting for since April 2015 (in Canada) tomorrow. He told me I didn't have MG in 2009 and I needed to see a therapist. Let's see what he says this time when I tell him how Mestinon works for me. Maybe he'll use it as a trial drug on more folks after talking to me. I stopped taking it as soon as the office called (on a Sunday!) as I am scheduled for an EMG. He never did an SFEMG before - maybe doesn't know how! Trying not to get my hopes up. This is just a second opinion so I'm trying not to stress. Kind of glad I didn't have 6 weeks to worry - just 48 hours.
Flutebell

I had my second (or does it count as third if it is the same doc twice) opinion neurology appt today. The doc did an EMG and RNS. I think they can't do SFEMG here in town! He says I don't have MG, a mitochondrial disorder or metabolic myopathy. He says some celiacs have ongoing GI and neuropathy issues. He had no explanation about why I still have a reasonably good response to mestinon.

Oh, well, back to the world of mystery patient with no diagnosis at all. I'm keeping my Medic Alert bracelet with MG on it and told him I was close to a crisis with my last bad cold. Hopefully if I ever get into trouble my bracelet can speak for me and someone will take it seriously. I have followup with a respirologist in July so maybe he will have some ideas of my shortness of breath, especially off Mestinon.

And tomorrow I meet my new naturopath, My former one moved but this is the head of the clinic and will continue to keep me alive, in spite of the specialists!
Flutebell

Amazing how different medicine is it seems us vs canada

Well we do get what we pay for! We pay in taxes but we never go into huge debt or lose our houses. If I have a crisis and need hospitalization and surgery, it is all free. Triaging is done by the severity of the illness. I am still walking, working and driving.Sure I'm getting weaker and more short of breath, but I'm not in a serious condition. My naturopath (covered by my work up to $600 per year) is like an internal medicine specialist. I likely would have been hospitalized by now without her and there is no waiting months for her. I've lived in the US and must say I'm glad I'm in Canada now.
Flutebell