Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Hi All!
I have a quick question for all of you with the droopy eye. Have you ever had any "formal" testing for your eyes......other than fatiguing muscle test? Any drops testing the muscles involved in the ptosis?
Of course, my eye droop was minimal. Do your eye muscles fatigue all the time?
Thanks in advance!
I have a quick question for all of you with the droopy eye. Have you ever had any "formal" testing for your eyes......other than fatiguing muscle test? Any drops testing the muscles involved in the ptosis?
Of course, my eye droop was minimal. Do your eye muscles fatigue all the time?
Thanks in advance!
The only testing I had for my droopy eye was the ice test. My neuro out ice on my droopy eye for a coupe of minutes and it immediately opened up! Then after a few more minutes after taking the ice off, it reverted back to its droopy state. I currently take mestinon every 3 hours for the droop and timespan 180 at night!
All the best,
Kerrie
The tensilon (edrophonium) test -- administer it and shortly ptosis goes away briefly in MG.
http://telemedicine.orbis.org/bins/volume_page.asp?cid=1-2630-2679-2685
In looking at the tensilon test info, I found this interesting note that tells us tonic water can be a problem with MG.
Before the Tensilon test came into use, an opposite approach was in vogue, namely, seeing whether one could make the myasthenia worse. The physician gave the patient quinine, which reduced the sensitivity of the motor endplate and thus aggravated the myasthenia. This approach is no longer taken, but the reaction to quinine may still be seen in two other situations: (a) a patient who drinks tonic water may ingest enough quinine to cause a worsening of any myasthenia and (b) quinine given to many older people as a treatment for night leg cramps may at the same time aggravate a myasthenic process.
fatigued or when attempting up-gaze' Obviously he was able to observe this and had to hold my right eye open.
Lorraine
L