Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
My ptosis has been returning the past few weeks and got worse this weekend whe we were out of town for the weekend. The weekend just wore me out even though it was just a bed and breakfast stay. We did go out for meals and some light shopping, etc.
The thing I am wondering about is I wake up with the ptosis. It is both eyes, but the left is worse. It starts improving after I am up and about and usually is better within an hour or so after waking. Does it seem odd for it to be in the mornings and then improve? Curious about your experiences with ptosis.
I called a neuro-opthamologist I had seen several years ago when I had ptosis. He had told me to contact him if I had a significant recurrance. His office gave me an appointment in October and put me on the cancellation list also. He is at a major eye center.
I have a regular opthamologist I will be seeing Friday for a regular follow up due to increased pressure in my eyes. I will mention it to him also.
The thing I am wondering about is I wake up with the ptosis. It is both eyes, but the left is worse. It starts improving after I am up and about and usually is better within an hour or so after waking. Does it seem odd for it to be in the mornings and then improve? Curious about your experiences with ptosis.
I called a neuro-opthamologist I had seen several years ago when I had ptosis. He had told me to contact him if I had a significant recurrance. His office gave me an appointment in October and put me on the cancellation list also. He is at a major eye center.
I have a regular opthamologist I will be seeing Friday for a regular follow up due to increased pressure in my eyes. I will mention it to him also.
Also
Everything about this disease is weird. Are you drinking coffee. Coffee seems to help symptoms in the morning for me .
If it helps it will really helps.
Won't hurt to try. If you don't have mg it won't help and you could quit taking.
It is a life saver for many of us.
Would you consider asking your general doc for it? My general doc gave it to me even before I had testing done. I think they would consider it a pretty harmless drug.
When I searched fluctuating ptosis a bit ago it suggested taking photos at various times of the day. I decided to take a photo of my face this afternoon and noticed the eyes look even better. I was thinking they improved fairly quickly in the morning so It was a bit of a surprise to notice even more improvement in the afternoon.