Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I just had this test done yesterday by a neuro optomolgist. She injected prostigmine into the muscle of my arm. In 15 minutes I was suppose to fill twitching in my face as she put Ach turbo charged into my system. She expected to see double vision improvement as well as eyelid strength in 30 minutes. I was her first patient not to have the twtiching symptoms from the injection and with no noticeable results.. I have been on Mestinon for two weeks and I have seen improvement in double vision as well as leg weakness. BUT SHE IS NOW QUESTIONING IF I HAVE MG. Which is good news. She is going to do the same test again next week, to see how I do without Mestinon and them perform the test again.
Has anyone else had this test to confirm MG?
Has anyone else had this test to confirm MG?
I am sorry so many of you are on the merry go round with the doctors.
hugs,
sherry
Pyridostigimine is mestinon. So if you are reporting to her and us that Mestinon is helpful for your double vision and your leg weakness, why are you getting it injected? They don't believe you?
I suppose when you do it without mestinon you will have a better reaction if what you are saying holds true. Then it would be a question of how much you need to be on, and/or what you can do to truly treat your condition, if in fact you have MG.
You should have a single fiber EMG, or a blood test to verify MG if you haven't already for starters perhaps.
PEACE,
TJ
AKA Neostigimine,
Again, if you were telling them you were having a reaction to Mestinon, I am not sure why this test would be administered. Trying to get a view of improvement for themselves to give you a diagnosis perhaps? Again, I am thinking that is you react to mestinon, and go without it and have the test, you will respond, which may allow them to Dx you. This doesn't seem commonplace for testing of MG, but I think I understand why it is being done. Perhaps others can comment on this as to why it is happening etc. Of course I wish you well, and please keep us posted.
Please forgive me if I had read that you have gone through the tests already. I can be forgetful. There are many myasthenics here in the group that are seronegative for MG. I think the main problem is not only getting a diagnosis, but also finding what will help you get relief of your symptoms. I wish you peace...
TJ