Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
It could be an insurance issue. If your insurance co-pay has changed, or if you have reached the gap in medicare/medicaid. You might start by contacting your insurance company and asking them why. They do make mistakes at times that can be corrected. Hope you are able to get it back down.
One more thing, ask the pharmacist what the drug would cost without insurance. They put me on Methotraxate shots for a while. My co-pay was $40 dollars a shot, but the pharmacist told me that if I just bought it without insurance it was only $10. They have contracted prices on some of these drugs.
Don't know if any of this helps, but we have to try.
God bless.
I take 3,4 dap for Lems and it is given away for free by Jacobus pharmaceuticals on a compassionate use basis. It has been successfully treating Lems patients for over twenty years. Because there are so few Lems patients, they never secured FDA approval.
So along comes a large pharmaceutical, Biomarin, who took the same drug, added a phosphate salt stabilizer to it and proceeded to get it approved as a new drug in European countries and started charging thousands of dollars for the same old drug. Because it got approved, the unapproved version was no longer allowed to be prescribed. As a result, patients are without the drug.
Biomarin then sold the rights to that drug to Catylist pharmaceuticals here in the US. They are declaring that this is a new drug that they have developed for a promising new treatment for Lems. They neglected to tell their stockholders that such a drug already existed and has been used for over twenty years, so they were sued by the stockholders for this lie. Now they are trying to get FDA approval so they can charge astronomical prices for it. They are also trying to get patients that have been on the Jacobus dap for years to join their studies, so if they get the approval they will be able to start charging.
Jacobus, the original and benevolent manufacturer, is now quietly seeking FDA approval before Catylist gets theirs.
There are a lot of dirty tricks in this medicine business...
Please let us know if any of these options work out for you. It might help others here in the same manner. Good luck!
Sage advice.
Thanks for the post.