Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Rankin
When you have increased your dose of prednisone, did your symptoms get worse before better?
deleted_user
Mine get immediately better when I increase. :)
SeattleWriter
I feel better immediately when I increase. My neuro warned me that it's possible to feel worse before better, however.
chuckie1
It took me just a very short time before i felt better but my mood did go through some ups and downs.
deleted_user
I immediately got better
annkemp
while in hospital I was then prescribed prednisone. They kept me for 5 days to see if I got worse. I went home and then in 10 days I got worse and had to go back into hospital.
deleted_user
I felt better pretty fast and eventually was able to decrease slowly and still be fairly good..Down to 2.5mgs now so hoping can stay at that!! Never know but so far so good with that...
carolela
I felt worse and actually ended up in the hospital. While in the hospital the doctor increased it and did IVIG. After that I was better. I am know completely off of the Prednisone. (nine month taper).
annkemp
I think about 25 percent of us get worse before better
deleted_user
It depends how much the increase was. If it was a small increase, it could get worse before better.
deleted_user
Better as I started to increase the dosages. I'm at 60mg now
Cj416
I responded best when the pred increase was a lot however for me the side effects were more severe as well and almost always id choose side effects over exasperated mg symptoms .
deleted_user
My side effects pretty much stayed the same, but I felt a lot better with the increase. Now I'm working the opposite way. I have started my taper. So far so good, but I know when I get closer to zero the side effects will get worse
HappyGuy007
Hi to everyone in this wonderful community... Looks like I have MG. While waiting to see the neurologist suggested by my ENT(seeing him for chewing, swallowing, speaking problems), I had an,"event," on May 2nd... At breakfast, couldn't swallow a morsel of food, my morning coffee going up my nose rather than down the hatch. Drove myself to ER, fast tracked, put on,"nothing by mouth,"(failed bedside swallow test, not even a teaspoon of apple sauce could I take). Two days later, after all the x-rays, scans, and blood tests, neurologist suggested a test dose of Mestinon... Had my first dose, 60mg, at about 8PM 5/4.... Next morning, before any additional Mestinon, I was given another bedside swallow test which I passed easily...I was put on normal diet... After 3 meals with no problems, the neuorologist declared the Mestinon was working, put me on 60mg 3x/day, and sent me home... Completed 1st month on Mestinon 2 days ago, and it has continued to work well... Finally, my question... Have my 1st appt. with neurologist in July(what a wait!). I am a Type II diabetic, well controlled with a very low carb diet, and Metformin. I am concerned that he may prescribe Prednisone for my MG, and that this drug will cause me problems with my diabetes.... Should I be worried?? Any thoughts, comments will be greatly appreciated...
SeattleWriter
Hi and welcome, HappyGuy. I don't know an answer to your question, but I want to encourage you to post it as a new topic to the forum--not everybody is going to see your question in the replies below. :)
HappyGuy007
Thanks for your response SeattleWriter... Inclined to leave it here for a while to see if anyone with experience/knowledge in this matter responds... As a Type II diabetic, I find the prospect of being put on Prednisone troubling... Didn't think I could become more anxious about having MG than when 1st diagnosed a month ago... I have... Really glad to have found this community....
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