Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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Port from tunneled catheter

wgreen19
wgreen19

I'm finally transitioning from getting stuck in each arm for plasmapheresis, to a tunneled catheter, and now finally a port.  My question, to those of you have experienced it, can they remove tunneled catheter and install port at same time?  My neuro wrote the order, but I haven't had the appointment that will provide that information.

whales86
whales86
Are you getting a centeral line ? Tubes come out right below your collar bone).
wgreen19
wgreen19
No, I am supposedly getting a dual port underneath the skin.
whales86
whales86
Oh. That is my plan D. I'll keep an eye out on your post for info on it
From the long term port my Nero explained it to me is they re-arrange the vains in your arm are to make the them large enough to hold the volume of plama. They put the need in though your skin just like a regular port. It takes 6-9 before you can do it
wgreen19
wgreen19
That's a fistula, and I don't know many receiving plasmapheresis who are going that route; most seem to have a port under the skin. Now, of course, let see if other write saying they have a fistula and love it.