Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
I am home from three days of plasma exchange (PLEX) at Vanderbilt in Nashville. I now have a tunneled catheter that I will keep for three months. The plan is for one day of PLEX every two weeks.
So far, treatments help my walking but nothing has helped my breathing. Swallowing is becoming more of a problem also.
Our town (Ringgold, GA) was hit hard by an EF4 tornado on April 27. We are OK and our house has no damage. You can find our more on my blog at http://krbunn.blogspot.com
Some of those new to this group may also be interested in my story--which is too long to repeat here.
Hang in there!
--Kerry
So far, treatments help my walking but nothing has helped my breathing. Swallowing is becoming more of a problem also.
Our town (Ringgold, GA) was hit hard by an EF4 tornado on April 27. We are OK and our house has no damage. You can find our more on my blog at http://krbunn.blogspot.com
Some of those new to this group may also be interested in my story--which is too long to repeat here.
Hang in there!
--Kerry
After I went into crisis earlier this year, I had a 5 course treatment of PLEX (over a 7 day period)
As a result I came off the respirator, and started feeling alot better. I also then had 1 ICIG treatment - but this was mainly to prepare me for my Thymectomy. Anyway, Like said, hope that you start seeing the positive effects soon, You should Do !
Regards
Christo
So sorry to hear about the tornado hitting RInggold. That was a truly horrible weather system. I'm so glad you and your wife are safe. God bless those people.