Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
In the past I had plasmapheresis thru a temp port in my chest. Removed each time after treatment. Then I had a Fisula put in which clotted and never worked. My question is, does anyone have a different type of port for plasmapheresis?
Thank you in advance for your time!
Thank you in advance for your time!
I had to get a more permanent one because all the ins and outs of the previous ones had caused occlusions in my neck veins. The surgeon told my daughter that he didn't think I was a good candidate for an a/v fistula.
There are a few other members that have implanted ports.
They can also place separate larger bore ones on each side, but that wasn't an option for me because of the occlusions.