Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
It's been one week since I had the IVIg, and I feel pretty good. Saturday, I took my son hunting. I didn't hunt, I just walked with him. It felt so good to be able to be out there with. We had fun. I rested Sunday, then we went back out again this evening after school. Again, I just walked with him. I am thankful for this little bit of time we get to spend together. I guess it really isn't about hunting for me.
After this week, I still have some slight arm and hand weakness, still a little slurring sometimes. But I listen to the advice that all of you give me, and I rest and don't push myself to the edge. I can recover quicker. I can swallow food, and chewing isn't as bad, as long as I don't eat tuff meat. Ever since I been diagnosed, I eat only healthy foods, and I can't believe the difference in the taste of things that I thought I never liked. Today, I ate raw vegetables (which I hated before), but they were so good, I couldn't get enough.
Doc said I'm going to gain weight on the prednisone, I told her I won't let it happen. She said not to get discouraged if I do, but I lost another 5 pounds since I talked to her last.
But, the thing I enjoy the most from this is the ability to breathe. I hope the IVIg treatments keep working. Thank you everyone.
After this week, I still have some slight arm and hand weakness, still a little slurring sometimes. But I listen to the advice that all of you give me, and I rest and don't push myself to the edge. I can recover quicker. I can swallow food, and chewing isn't as bad, as long as I don't eat tuff meat. Ever since I been diagnosed, I eat only healthy foods, and I can't believe the difference in the taste of things that I thought I never liked. Today, I ate raw vegetables (which I hated before), but they were so good, I couldn't get enough.
Doc said I'm going to gain weight on the prednisone, I told her I won't let it happen. She said not to get discouraged if I do, but I lost another 5 pounds since I talked to her last.
But, the thing I enjoy the most from this is the ability to breathe. I hope the IVIg treatments keep working. Thank you everyone.
Cindy
Maryanne.
Terry from up in the mountains hehe
Keep it going!
TJ
Wishing you many more walks in the woods.
Word of caution on the veggies, consider softening them a bit so as not to weaken the jaw muscles. When you're feeling brave, try a veggie smoothie. Yumm.
Cheers!
;)
Glad to hear that you are seeing improvement!
- Ross
I had 5 days of infusion, and the last three days I can really start to feel it kicking in. My neuro has me setup with an infusion every two weeks going forward. I'm so thankful for all those donors that make IVIG possible for people like us!
Barb.