Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
hi it all started last year in july i wake up with double vision so i was rushed to er where they did ct and some blood tests and was diagnosed with 6th nerve palst. ct was normal and i did mri few days later which came back normal. it says mild thickening or widening of the optic shealth 7mm in width. this is of unclear clinical significance. no additional images to suggest intracranial pressures.three small(less than 5mm) foci of abnormal signal intensity in the white matter of the cerebral hemispheres. in a patient of this age theses findings are commonly a result of migrane headaches. thats what the mri says but i dont have headaches!!! anyway they put on dexamethasone 18mg daily then tapering and it started working 4 days after and by 8th day it was gone the double vision but it came back after 3 months this time i took prednisone 60mg and tapering and it took maybe 7 to 8 days and went away and came back after 2.5 months took dexamethasone for a week or so and went away but came after a month an a half . i decided not to take anythng . it sarted on right gaze and after 10 days the double vission moved to upward looking and less on right and 10 days later moved to downward and it was bad came dizziness lightheadedness i felt am gonna fall while going down steps or climbing steps. after a month i could not take it so i decided to take prednisone again but this time its not working as fast as before i got better but now 2 weeks on 60 mg and its not improving 100 percent i still have some issues but i definetly better than when it started. achr anti bodies done last year was 0.6 a little high and then 3 months later was normal and i tested 3 weeks ago and it was zero and i did the single fibre emg also 3 weeks ago and its normal ... is it myasthina graves?????????i have no other symptoms but the double thing. please what do u think???????
MG is progressive, if not treated. Which means it keeps getting worse, with the symptoms increasing.
Prednisone is a treatment for MG, so if it is MG that would explain why the double vision got better while taking it.
Good luck.
On the double vision without ptosis ... my understanding is MG very individualized. In my case, had both ptosis and double vision ... but the ptosis only affected one eye. As others have suggested, keeping a log was useful as over time, it helped me make a bit more sense of what the patterns were and this helped a lot in terms of my ongoing consultations with the neuro doc.
On the double vision ... found an excellent solution in "prisms" ... kinda of like an extra lens that can be glued over eye glass lenses ... and this helped me bridge that gap until the mestinon/prednisone kicked in and eliminated the double vision.