Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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BCCanada 02/05/2013

For the first time in 3 years, I have had 2 weeks of feeling really well, with no facial droop and full walking strength; however, I also do not sleep at all..no more than 2 hours at the time. Is this related? I took some sleeping tablets, but this does not help at all either..Can anyone reassure me that all will be well?

deleted_user 02/05/2013

Are you taking prednisone? It definitely causes wicked insomnia, but you need to be careful what you take to help you sleep, since so many medications can exacerbate MG.

annkemp 02/05/2013

Lack of sleep is horrible
I think it is the weather
I haven't been sleeping well either
If I don't sleep tonight it is goodbye caffeine
Things I can do that help is
1. Very active day
2. Prescription sleeping pill

I always have to take sleeping pill when I travel
Wine will help too. But wine effects me neurologically.

annkemp 02/05/2013

When I I was on higher dose of prednisone I had the use prescription sleeping pills

deleted_user 02/05/2013

Melatonin helps me, but I still have a lot of sleepless nights. My prednisone was just increased, so now I'm expecting more sleepless nights :(

At least I work from home, so it's okay if I look like the walking dead the next day.

deleted_user 02/05/2013

Just a warning that Melatonin reduces the effectiveness of Imuran and prednisone. I became very ill once after taking Melatonin the night before.

Craig36 02/05/2013

If the sleeping pills cause you to wake more frequently consider sleep apnea

Cabbage7 02/07/2013

I am in agreement with Craig, it seems like maybe you should have a sleep study. You possibly could have sleep apnea. I had that same problem. It's not good to be sleep deprive. God Bless. Cabbage7

BCCanada 02/08/2013

Thanks for your input! It may be because the Ritux treatment is kicking in and I feel so energized; my body just can't seem to shut off? I am not on prednisone anymore; only on a bit of Tacrolimus. Now I am so well these last 2 weeks, I do move more, so quite an active day for a MGer... I'll try again tonight. I have done a sleep apnea test, but as I have not heard I assume no news is good news. Again, thank you for all advice.

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