Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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onceinparadise 10/28/2009

Hello my name is Larry. I was diagnosed with MG in august of 2006 and my life has not been the same since.

I came to this site to find out some info and really to find folks just like me and that understand what im going through.

Sarah100 10/28/2009

Hi Larry. My 15 yr old daughter was diagnosed with generalized MG when she was 13. There are a few of us "moms" on this site. Our hearts especially go out to the young ones like yourself. Welcome. Sarah

onceinparadise 10/28/2009

thanks sarah. i hope your daughter is doing better.

deleted_user 10/28/2009

I'm another Mom. My daughter was diagnosed in 1996 at the age of 19. She is now 33 and is currently in the hospital for plasma exchanges. Feel free to ask any questions you have. Lots of us have years of experience in dealing with mg, but you have to realize that everyone is different. The things that work for one don't work for another. We wish you the best and again feel free to ask us anything. Marcia

deleted_user 10/29/2009

Hi Larry

Glad you found us and we found you :-). This is the right place to ask whatever you need to ask reg MG and how we are dealing (or not dealing) with it. There are a lot of wonderful people in here ready to help us.

Rajesh

deleted_user 11/01/2009

Hello Larry, my name is Darius and I was diagnosed in 2006. I too want to want to talk to others who understand. What treatments are you doing?

onceinparadise 11/02/2009

im taking mestinon time release and the generic brand of it. When i first diagnosed i was taking prednistone as well but after i showed improvements with just mestinon the dr removed me from prednistone.

one thing i've learned is that you cant be stressed out a lot and sometimes you have to wait to do things. But what you can do is try to revolve your day around your meds and then once you get stronger you can do more things.

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