Good start B. I will look over my MG material tomorrow to see if I can add anything but you have covered and linked some great info. Thanks...

Bruce

Thank you Bee for all that you do.

Thanks for taking the energy to do that !

Thanks B!

Thanks, B!!

To make it easier to find (hopefully), here's a link to the new Member Group homepage:

http://www.dailystrength.org/groups/myasthenia-gravis-links-and-news

I added some news articles about clinical trials (seemed like a good place to put them)

Thanks Jen!

This is GREAT!
Thank You Jen!
Thank You Beth!
I joined the new group!
- Ross

How do we put Cathi's ''Cooling Vest Testimonial'' on the new group?
Could we do that, please?
Handy for future referral!
- Ross

Ok - I copied the cooling vest testimonial and pasted it in as a new discussion. :)

I also put the clinical trials in a separate discussion thread and took them out of the news articles section. There is now a discussion topic index news article to hopefully help keep track of what's there. Not sure how helpful it will be, but, we can try it out and see.

Any other suggestions for the group?

And, I know some of you volunteered to help with admin duties, but I'm not sure who :) If you're interested, send me a message and let me know!

How does one access the group is we don't present them a link here?

Are we to use the site as a reference site for all of us here to help others or to refer people to it, or?

I think it is cool, Good stuff over there. Lotta good stuff out there and people here to provide it for sure. I was just wondering.

I encourage everyone to join and contribute what they have found most helpful dealing with MG diagnosis, treatment, understanding, and daily life, especially the references and advice that gets posted over and over and the references that are hard to find because they get lost in discussion posts on the main board. It is not so much discussion, as it is reference. If you find a particularly helpful link, a short description of what it is, then the link. It can refer to a discussion on the main board by copying the url for that discussion page. What I wanted was a way to find quickly the references to respond to people, not a "go read this." And for those who are initially shy about posting, it would be a place to find materials until they felt comfortable about joining in. If your reference refers to a topic already posted such as cramping then add that to the discussion under that heading, if its a new topic like a good way to deal with washing your hair then start a new discussion heading just like you do posting on the main page.

You can access the new member group by clicking on groups at the top bar. Once you join it will be listed under my groups in your box to the left. I don't know how the member groups are prioritized so as to be listed on the main page, probably by numbers of members, certainly not by activity. So join up guys and make it easier to find for everyone. b.

I joined...Thanks!

I'm in too! What a GREAT idea!
I would love to assist in this as well!
Thank you for putting this together Ladies!
Love, Becca

Sherry put in information about the spoon theory and the pocket full of nickles in Our Links Member Group. Anyone can use the information there without joining, but please do join if you haven't--at least I think with more members it will eventually be on our main page and more accessible to someone looking for it. If you are are a member, it will be listed under my groups in your personal left hand column. Thanks Sherry and thanks again Jen. b.