Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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catnap2 11/14/2011

I had my teeth cleaned today. All was good until the lady sprayed water on my teeth and I thought I was going to lose control and choke. We agreed she would only spray when I was sitting up straight. I don't ever put fluids in my mouth with my chin up or certainly not lying down. I'm kind of like a drain, stuff just runs down without being encouraged.

Ceegee22 11/14/2011

Cathi,
With you having swallowing issues, I am sure that was not fun. When I go to the dentist I have the problem of not being able to breathe lying on my back. I Have to ask to turn on my side to caught a good breath, so I don't pass out. It is the way my neck and throat are that when lying on my back it cuts everything off.

cgreens 11/14/2011

Definitely would not be a cool thing to happen. Swallowing dental liquids etc...

Thanks for posting and letting people know about this stuff. It can make a difference for sure!

Glad you are working it out with your dentist. It is very important to have a dentist that understands.

CMON CELLCEPT for CATHI! Start kicking some butt!

Peace,

TJ

catnap2 11/15/2011

I was really surprised by it when it happened. I've gone to the dentist regularly my whole life, never a problem even last time I was there six months ago. I realized something was different this time when she put the chair all the way back and I felt something was collapsing in my upper airway/soft palate area. It was better when she sat me up a little more. Then the water was just unexpected though when I think about it it does make sense, guess I should have seen it coming.

Here is a link Cathy. I took it to my dentist today but they just scanned it into my chart and didn't read it. Maybe they will before I go back. It's good information:

http://www.mgawpa.org/pdfs/Medical/Dentistry%20and%20MG.pdf

TJ, thank you for always cheering me on - GO CELLCEPT!

bweeds 11/15/2011

Cathy,
I'm so sorry that happened. Even before I knew I had MG, the hygeinist was good about asking about chair position. I took my information in a week before the procedure. When he saw me, he looked concerned and was pleased that everything went smoothly with the nitrous and thanked me for the information. We are still pretty small town here and I may be the only person who has generalized myasthenia. b.

Ceegee22 11/15/2011

Thanks for the link, Cathi. A lot of good information to have. My file of information is getting so big, but the more we know the better off we are.
Cathy

annkemp 11/15/2011

so annoying
I ask my neuro about a dentist who may specialize in issues such as MG and he didnt know of anyone. There has to be people out there who can help us more.
Ann

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