Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
It was about this time last year that Cathy, myself, and my neurologist made the decision to take medical leave from my position as Senior Pastor of First Baptist Church of Ringgold GA in January of 2011. That medical leave would end with my resignation in June 2011 for health reasons. I have severe MG and Small Fiber Neuropathy. It was the right decision!
Since January my health has continued to decline even with various aggressive treatments (CellCept, IVIG, PLEX, Cytoxan, etc.). We met with the neurologist on November 29 and it seems the disease progression has slowed. He had hoped the treatments would have made improvement in my current condition, but was glad the treatments had "kept me out of the ICU and off a ventilator." I am grateful for that too! At present, the six months of chemotherapy will probably be extended to one year. I will keep you posted. You can always follow what is happening on my blog at http://krbunn.blogspot.com
Thanks for your prayers and support. PS: My fourth cytoxan infusion is today (12/02/11).
--Kerry
Since January my health has continued to decline even with various aggressive treatments (CellCept, IVIG, PLEX, Cytoxan, etc.). We met with the neurologist on November 29 and it seems the disease progression has slowed. He had hoped the treatments would have made improvement in my current condition, but was glad the treatments had "kept me out of the ICU and off a ventilator." I am grateful for that too! At present, the six months of chemotherapy will probably be extended to one year. I will keep you posted. You can always follow what is happening on my blog at http://krbunn.blogspot.com
Thanks for your prayers and support. PS: My fourth cytoxan infusion is today (12/02/11).
--Kerry
It is hard I know.
Ann
Thinking of you today with your infusion and may all go well.
hugs,
sherry
You will be in my thoughts and prayers.
Cathy
Our prayers & good thoughts - are with you always!
Sidenote: life is interesting, isn't it?
When? A disease-progression, has slowed down.
And we KNOW! That's good news!
- Ross
Marvin
This is such good news that the disease has slowed, I will continue my prayers for better days for you. Continue to let us know how you are doing.
Annette