Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Sorry if this has been asked before! I am new to this site and to
MG and have been trying to figure out how to best navigate this
group/site.
How do you follow all the topics? (Everything is interesting to me!)
Do you log in and just go down the list opening each one?
Do you get emails each time something is posted to any topic?
If so how do you set that up?
Thank you in advance for answering my 'newbie' questions!
MG and have been trying to figure out how to best navigate this
group/site.
How do you follow all the topics? (Everything is interesting to me!)
Do you log in and just go down the list opening each one?
Do you get emails each time something is posted to any topic?
If so how do you set that up?
Thank you in advance for answering my 'newbie' questions!
I don't know about getting emails to alert you about posts, I don't get them though.
Good luck to you!
Lisa
Also if you are looking at a discussion on the board and want to be notified when others respond you can check the box that says watch this in blue in the top right corner of the topic. Then you will get an email when others comment on this topic.
f you want to follow a discussion there is a "watch this" in the blue bar with the discussion topic and look for other "follow this topic". I say this, although I have had no notifications since last March. The site does have its glitches! Duplications seem to be one of them.
On the right is an activities bar which shows the latest activity of people on site and when you go to "my friends" and click on "home" in the bar above you can see the latest activities of your friends. That is what I have to use to try and keep up.
You may have to change privacy settings to "my friends" to avoid postings like "sandraluvs." Report those to DS and that address will be removed from the entire site, although it may reappear under another name.
Welcome, b.
Rosie
My name is Sheri, I was diagnosed on 23OCT with ocular MG. I say this but I am not convinced of it being just ocular since I have weakness in my left arm and core. But thats what the neuro said. He is a 'specialist' in MS, and I would love to find one that 'specializes' in MG. But I am still looking for that.
I really do want to read every thread because there is so much to learn and every little tidbit helps. I am especially interested in using nutrition and supplements to help this from progressing. And I am really looking forward to getting to know everyone!!
Sheri
I seem to learn something new or ponder a new topic every time I come here. People are so insightful, caring and supportive here.
It is nice to be among people that now how you feel.
Thanks for being here with us.
Troy