Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Maybe not first degree related. .but interesting. Having my thyroid panels run tomorrow.
Good luck.
Here is just one link to MAS: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3150011/
b.
Angie
I guess TSH is one of them, anybody know what the others are?
Thanks. Chris.
In my case, the free T4 and free T3 are better indicators. My TSH can be in perfect range, but if these are high or low, I have big problems. So I usually ask to have the entire panel done, because only TSH tells me nothing.
Autoimmune disease do tend to cluster together. So far my collection includes thyroiditis, Lems, Sjgren's syndrome, and Reynauds. I am thinking I still may have more that haven't been identified yet.
I do know from personal experience that when thyroid levels are out of whack you get way more Myasthenic symptoms.
Anyways you can have your T3 T4 and a reverse T3 test ,now l'm not really sure on the reverse T3 test works and don't get it done as regularly as just a normal test but l believe its more for graves disease.
On a side note most of the mothers in my ASD support group have thyroid problems.
Also with my HAshimotots which started when I was 20 I only needed synthroid in the beginning. Then I started not converting T4 into T3 as well and I started taking a T3 medication BID. It is important to have T3 and T4 chekced periodically if you are having symptoms. T3 is actually the power house of the two and doctors normally only check the T4 routinely.
Hope this helps! Marie
Something that you should understand is that if there are thyroid nodules present, you may be dealing with what I was going through. My thyroid tissue was putting out zero hormones however, the nodule that was present (the size of a tennis ball) was producing the hormones. That's why my levels were always normal upon testing. They had to remove the nodule in order to determine how much or how little my thyroid was producing on it's own. It turned out that it wasn't producing anything so I am now on Armour thyroid (a natural animal product because my body doesn't care for synthetic drugs much) which works on my T3 levels but does little for the T4 or TSH. I also take levothyroxine (Synthroid generic) to help with the T4 and TSH levels. I still have major symptoms of thyroid disease on a daily basis. Stiff joints, sore muscles, fatigue, brain fog and slow metabolism despite my hormone replacement. I was told after my left thyroidectomy that I can expect lifelong symptoms from the Hashimoto's because your thyroid is your energy center and also manages the health of your hair, nails, skin, and bowels. Sadly, I thought that he was being a bit cynical but it turns out he was right. That has been my experience but as others have said, we are all different. I truly hope that you don't find that to be the case for you. Feel free to send me a message if you want more information on my experience. I'm an open book and would love to share more if it will help others.
Aloha,
Angie