Myasthenia Gravis Support Group
Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...
Hi All,
I am so glad to find this forum. I have Rheumatoid Arthritis, Celiac disease and I am now possibly being diagnosised for MG. I am currently waiting for the blood work to come back. I am having drooping eyelids, double/blurry vision (which I have had on and off for a few years but never figured out what it was because I thought it was an inner ear problem), weakness, fatigue, trouble swallowing (only for about a week), and some muscle jerks. I am wondering if anyone else has had these muscle jerks? They are only usually in the morning while I am on my computer. My other symptoms are worse at night and also in the morning (with the blurry vision only, muscle weekness and swallowing at night). I have found that if I take ativan for trouble sleeping, then my symptoms the next day sky rocket! I am very nervous as for what is to come. Any advice would be greatly appreciated!
Hi Maggie,
I am double antibody negative but confirmed MG through single fiber EMG.
I think what you are describing may be myoclonus. I went through a period of that before I was diagnosed. Although mostly I had twitching under my skin which, when I showed a video of it to my neurologist, turned out to be myokymia. It went away after I started taking Mestinon.
Myoclonus can be caused by many things - and some of them aren't particularly serious. But be sure to tell your neurologist!
About the trouble swallowing. Whatever the cause, when it is acting up, be sure to take small bites and try not to talk when you are eating. Your physician may send you for some swallowing tests, and if they are positive for dysphagia, a speech pathologist will probably show you some techniques that help.