I talked with my neuro and he seemed to think i would be,although more high risk than my previous pregnancies,completely fine.I seem to not have it as severe as others on this site but it does leave me weak.My biggest thing is caring for three children instead of the two I already have(1 year old girl and 2 and a half year old boy).I'm 23 and had totally planned on at least one more baby but everything I have read leads me to the same conclusion as your doctor and try to wait for remission.I never required C-sections with my babies and I was completely healthy.To try again,when I am sick and some days can barely take care of the ones I already have,seems wrong.

But there is a HUGE part of me that is so sad that I will never meet the "phantom" third baby.My husband is getting snipped very very soon.

I really don't know anything about alot of things, and this is no exception, as far as having them with this illness. I do know that when it comes right down to it, it's got to be up to your husband and you. And the Dr. has a very important imput. No one knows better than a mother about her babies. That being said, I think even if it's hare you are best to temper that with wisdom. On the emotional side, I had five children, adopted two, then had one. I married a man who's wife died and they had five, that makes twelve. Then two weeks before our first anniversary we had another son. To someone else that seems totally insane. Yes it is. But in my heart I knew it was the right thing. But I didn't have health problems back then. To the practical part. I had a friend that was a brittle diabetic. She married in her late thirties so needless to say, she wanted children all of her life. After she married her husband kept saying we should have a baby, let's have a baby. Several months later, they were pregnant!!!! They were elated. She felt so good and they were on cloud nine. She was finally coming up on 6and one half months when she went into labor. The baby was born a girl, but they were never allowed to see or hold her. She was still born. It was hard on them both. Then Ted arrived home from work one day to find Diana had died in her bed, some months after the baby was born. Both Diana and I seemed to be unwise in what we chose, but only you can choose. I would like to suggest you check into adoption. I have never for one minute doubted that it was one of the best decisions of my life. They have had a hard time, all the kids with my health problems the last few years. I won't lie, it has been hard on them and my husband. Oh well, sorry for spreading my lack of wisdom around. That is what I would tell afriend, and your a friend, right? Carla

Its such a hard topic i feel im being selfish to bring a child in this world not knowing my future... I have thought so much about adoption and its so expensive...But before my husband and i even were married adoption has always been heavy on my heart. I just feel like im so young...And i wanna expierence pregnancy one more time:( i no it sounds selfish when i say it outloud....Thank you ladies:)

I feel the same way. I am 27 with a 6 year old and a 3 year old and was planning on getting pregnant right before I was diagnosed... I had the dr.s appt to get all the necessary things done and everything. My Neuro told me to wait 6 months before I even think about it, but how can you not? I felt so strongly before and now it seems that it might just be out the window. It is very hard and confusing and you are not alone in this... I also feel like how could I bring someone else into the world not knowing how to take care of them, or do I just try my hardest to live the best I can for the 2 I have, and still hope for a remission. Hopefully you will be able to get the answers you need.

I loved pregnancy.You so not alone in that,it was a great thing to experience and probably the happiest I have ever been having a huge belly!I have tried to appreciate the babies I have but it is so hard when in your gut you do not feel done.

So true weather or not i have another biologicaly or through adoption...im sure whats meant to be will be meant to be:)

I honestly think the bottom line is to follow your heart and your head equally, but then that makes me a huge hypocrite. And way back when I had many at home, we are down to seven, I had my health. I have not only had these health issues. I really think I was expecting too much from myself. But, who would I leave out. No one!

I have recently thought about this issue. I have a 3.5yo and a 1.5yo and always wanted 1 more. Right now I can't take care of the 2 I have - but if I ever did go into remission - I would want one. In thinking about this - I have done some reading and so - please talk to your neuro about this if you are considering. I was about to start something in addition to my prednisone and stopped after 3 days when I did more investigation.

Some immune suppressants that are suggested for us are "mutagenic." There are muntagen studies on each drug ever developed which shows if they can harm embryos. (there is panel of mutagen studies done for each drug) They also should show if they can harm the eggs that you already have. This is a much more gray area for the tests that they do - because they can't always prove that the damage is permanent - or perhaps if you stop the drug for 6mos - that the effect will wear off.

I still don't know the answer to this - some of the drugs suggested to us are definitely worse than others. I love my neuro but wish someone would have brought this up to be beforehand.

Like the rest of you - I know I have 2 beautiful and HEALTHY babies and should be happy with what I have...but that is a hard thing sometimes....

I think I commented on this once before. Also talk to your pediatrician. Not only will you be high risk, but your baby will be also. I was not so sick when I had my second child, but she had transient neonatal myasthenia and everyone needs to be prepared for that possibility. It is transient (but not wholly if you breast feed). Our antibodies pass through the placenta and are also in breast milk. Medications are another matter to discuss. I am 65, and glad I am not 25 or 35 facing such a decision knowing that this disease is lurking. b.

The heart wants ,what the heart wants and sometimes our head doesn't even,get a chance'
Though not sick with mg when l had my third,it was a difficult pregnancy,birth(my OBGYN had said never again) and he was a sick baby.When he was 6 mths my husband had a vasectomy.IT was a huge decision,as despite all that was said l would have loved another ,and l truly did feel grief at knowing for me that was that.
My youngest was dx'ed autistic at 2 ,even though everyone around me was saying it was a good thing l'd have no more,l still struggled with the decision that we made.
Now 21 years later.it was the right thing for us,but you know if we could all see into our futures how different our lives would be.

Really talk to your partner ,family , and friends (and doctors) about this, will they give you the support you need?.

One thing that having both a child with a disability and having mg has taught me,is that you really find out who your friends are.

Now l have two grandchildren and another on the way,and l get to do all the fun stuff that littleones bring to your life,with the knowledge that when it all gets to much l can send them back to mum and dad.

I am in the same situation, I am 23 with a 4yr old and a 1 1/2 yr old and would love to have another.. I to am hoping for remiyssion to, then maybe one more. I dont think it is selfish at all, to want more.
But go with your heart and husband and Dr. I think most of the meds are bad and can harm the fetus, what medicines are you on?? so hopfully we can go into remission and have more! Good luck!

I read a book this week end
How to hear from God.
Talk to him about it.
I hope you get a straight clear answer. I always listened to others and now I didnt have enought kids. I am having grandkids and still want more kids. If you thinik the desire will go away.....mine didin't. Wanting a baby is a Godly desire.
Ann

I am a Mom, Grandma, pediatrician, I love kids, they love me (also strange dogs, but that is another story). There are enough people posting on this thread that no one has to take this personally and since no one is inclined to listen, I hope I can post this and still keep the promise to be "nice." I think the title of the posting is very revealing--it is about babies, not pregnancy risk, not neonatal risk to infants of myasthenics, or how to engage support for family dealing with serious medical problems, or how to chose a guardian for your children. A newborn needs more than cuddles, dress up, and being read to. They usually become teenagers and young adults with needs even if they are healthy and there are no guarantees. People on this site with children are struggling, and for children already born, that struggle is important and worth the effort, but this dicussion is about "babys" and not the very real difficulties of medical disability for children and mothers. Most of you are young and have childbearing years ahead, at least get yourselves in the best position you can to take on pregnancy, the real possibility of having a baby in the ICU at least temporarily, and the additional burdens of another very real person with all the quirks, needs, demands, and delights of which we are all capable. b.
PS The treatment future may be brighter for us and our neonates, but that doesn't appear likely for the next several years.

Just another comment...waiting for remission before getting pregnant is a good idea. BUT what happens if you go out of remission? It happened to me!

Honestly, if I had known back six years ago what I know now, I would have been scared to death. I did everything that I needed to do. I had my last child at 42. I had 11 other children at home, one married. I was up in the morning and going until I went to bed. The kids did their chores, the house was clean, the dinner was on the table. I could carry (help someone) a small washer, a couch, boxes of books ect. I was very strong. I had never been to doctors much except to have babies and surgery for endo. I had depression, but under control. I looked pleasant, not just to myself, but others. In the last six years alot has changed. Things are very different now. We are still here and the kids are doing ok, I know everything is part of a plan, but can we add or subtract to those plans. I don't know, but I can't say that I don't wonder if things could be different for them. I don't have an easy advice to give you, just food for thought. My older daughters each have two children. They are so much more able to have time with their children. If they were sick, it would be very hard for them as it is. B is right that teens are whole different ball game altogether. It is huge!!! I have to put in twice the energy into them than any baby I have had. I love babies, give me ten babies over one teenagers. I have adaughter that was born when Glenda (John's first wife) was still alive. She almost died giving birth to her. She weighed one pound five ounces. They both should have died. Glenda was a NICU nurse. So, you can see alot of why Paige did so well. That and the fact that she is stubborn as hell. She lives with that number, one pound five ounces everyday of her life. She is going into the tenth grade next year and she is 72 lbs. and four foot ten. She is mentally about 10 or 11 years old. It is a gamble at any rate to have a baby, but it stackes the odds against you to begin with. I really do thank the Lord that I was not to be in that part of her life. It would just have been too painful. I see her pain now is too, but I don't have to see her smothering slowly and having to be poked in the heel till they have dents in them. I can still grab her heel and squeeze and pull it towards me and she will immediately pull it away from me, like before she knows what she did. Those memories are there for her, and I am so grateful that she is doing so well and was able to be so strong, I am so sorry that she has had so many hard things to deal with in her young life. Babies are so easy, at least when they are healthy, the downside is that they go through an period that takes more ENERGY than it would take to light a whole house for a year. Called the teenage years, anywhere from 12 to 20, depending on the kid.