Myasthenia Gravis Support Group

Myasthenia gravis (MG) is a neuromuscular disease leading to fluctuating muscle weakness and fatiguability. The hallmark of myasthenia gravis is muscle weakness that increases during periods of activity and improves after periods of rest. Although myasthenia gravis may affect any voluntary muscle, muscles that control eye and eyelid movement, facial expression, and...

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/ Myasthenia Gravis Support Group

Musk positive / anxiety please read !!

abrookez11
abrookez11
Hi all haven't posted here in awhile! I have musk positive myasthenia Gravis. I am interested in those who are also musk what treatments are you on? Also whether you are musk positive or not are any of you on anxiety medication ? I have been hospitalized 3 times since I have been diagnosed a yr and a half ago due to my breathing issues and have needed assisted ventilation all of those times. Never have been intubated yet & hoping to never be. Needless to say this has caused me so much anxiety it's starting for me to get hard to distinguish between the two. Please share your experiences with me about anxiety meds.
xmas25
xmas25
Anxiety meds are for the purpose of reducing the anxiety but do take time to work. Everyone is so different in meds and rxs. It depends on where you live since things seem to vary geographically. I had alot of issues in begining espec after reading too much! Please do what feels best for you therapy,meds journaling relaxation etc. I treated myself to a facial monthly in beg. No massages since i was afraid to relax too much or have hurt muscles. Take care have a good nite
ladylife
ladylife
I am sorry you have had such a rough year and a half!

I am not musk positive. However, long before I was diagnosed with MG, I had sudden breathing problems accompanied by significant and inexplicable anxiety. The anxiety was, in part, due to not being able to breathe as well as going from one doctor to another only to be told they didn't know what was wrong with me. The anxiety
lasted about 6 months. I did take anti-anxiety meds at that time. Now, occasionally when the breathing gets sketchy, I have momentary anxiety, but it does not last--thankfully! Based upon my previous experience, I DO think there is a link between MG and anxiety. Then add to that our breathing problems and the paucity of information our docs know about the disease. We have reason to be anxious!

I hope others who are musk positive respond to your post. Please know that you are not alone. If you need to take the anti-anxiety meds for a while, don't fear. Do whatever you need to do to get better and look at it, not as a weakness but as you equipping yourself to get strong and healthy!

Hope this helps!